set up 6 mo post op for feb....

[Sexybare]

Looks like I will be flying back to dr oro in feb....I haven't been noticin much change and I have new symptoms now....is seein my ns again a good idea?! I need to know if somethings wrong....or for him to tell me its normal for chiari....something?!

[irislita]

so sorry dana fore ur issues...but i would recommend u go back and see dr.oro...I took my time off chiari now hanging out with my family and that helped a lot. and now i start to focus again for the next surgery...I hope u get answers and help this year...its been a rough last year for u, i know...hugs and prayers my dear

[cash242]

I am so sorry that you are still so miserable. Selma is right about the instability the fusion did me wonders but I know you don't want to hear about another surgery right now. I feel good that your in dr oros hands if there is more he will find it. Having the  occipital neuralgia doesn't help either. Hang in there friend.

[selmaS]

  Hi...if u have EDS and instability that can be the cause....and it will do u good to see ur NS as I am sure there is something that can be done...fusion is one such option.....

Mayb in the meantime u can get a next brace to help hold ur head from bobbling around....and see how that may help.

  ((hugs))

[linnielou232]

So sorry to hear your still having problems.  I know how this feels.  I think after surgery and we begin to heal we start noticing things that were probably there in the first place, but can really feel them now.  I deal with something each day which makes my family have to deal with issues.  I get so flustrated.  In the long run I know I'm better, but it's just hard to adjust.  Wishing you good results in Feb.  Hoping you have a wonderful New year.  It will be a quiet on here :)
Linda :)

[Sexybare]

Well my headaches since surgery were less until a few weeks ago...they are getting just as bad as they were before. Still have pressure in head. I have plate and the back of my head aches almost nonstop...like where the screws may be?  I also have a spot near my vertebraes that hurts nonstop...my autonomic dysfunction is out of control....I was dx with eds reccently and my neck isn't very stable....takes everything I got to hold my head up and my neck and shoulders are constantly swollen....I know there's more lol. But can't think clearly....

[Viva001]

What are new symptoms?