Wow, I'm being told my 16 yo daughter has POTS disease. But in addition to the POTS symptoms shes had the same knee, leg, hip and back pain you've mentioned. Its been years and from one dr to another to a chiropractor. The Dr. at RWJUH thinks its POTS and now we have to wait until february to See Dr. Boris at CHOP.
little set back with sickness this morning but as day goes on its disapeared.
Head very numb still and scalp gone flaky ! Using baby shampoo now as nurse said gentler .But feel better in myself most days. xx
Yay...so glad you are able to get thru 2 days without the meds...that is fabulous.....
Knowing you have other issues help us know it is not ALL Chiari.....and that it may be able to be relieved at some point....
Praying you continue to see improvements.
yes as you say, i know what is causing my back pain too so not worried too much. its lower back pain too . had mri scan on it when i had scan for head and he pointed out there was wear and tear there. comes and goes depending on what sets it off. I suppose being laid up hasnt helped it . Day 2 and no sickness tablets needed .xxx
What part of your back is the problem?
I have always had lower back issues but I do have tethered cord and I know that is where my pain is from.....
Glad to hear you got out to walk about....I remember how great that felt.
Praying things keep going so well <3
Yay went out in car with hubby and had walk round shop feel like im getting somewhere now. Only thing bothering me is my back it was a problem before operation and I thought had gone since not had any bother last six weeks. Wonder if med I was on kept it away. Soon as feel ok will have yo visit gp again ss an on going thing . Physio hasn't helped . Consultant said I had bit wear and tear on scan. Just age I guess ! Lol