stage 1 of chiari malformation does it get worse

[lollypop28]

type 1 chiari malformation, does it get worse and is it heredity?

[selmaS]

  Keep us posted : )

[tee_ya]

Thank you for your reply..still trying to get my ENT to get moving on this and send me to a proper dr for this.

[selmaS]

  No worries...I hope u find the right Dr....do keep us posted on ur search!!

Good Luck

[THackley]

Thank you thank you! That was more information than I've ever heard out of any of my Dr's mouths. I've said it before and I'll say it again, thank God for forums and people with keen insight. Man.... I would be lost without you guys!

[selmaS]

  Hi and welcome to the Chiari forum.

Finding the right Dr is key....and as I suggested to the above new poster that using the list of Drs we have in the Health Pages can help u with a starting point in researching Drs...as I mentioned these lists r not meant as a referral...just as help in getting started. http://www.medhelp.org/health_pages/list?cid=186

There r Drs listed for CA in the Kaiser system.....and please note u may have to travel to get to a dr well experienced with Chiari and related conditions.

  With some of the symptoms u mentioned it is possible u have a syrinx...so do be sure they rule that out by doing MRI's on ur complete spine not just ur cervical spine.

And speaking of the cervical spine and having a reversal of the lordosis, I wondered if u were ever in a MVA? WHip lash can cause this to happen....and I had it too, this can cause much of the pain and issues u r dealing with as well.....so do make sure they check u for all related issues and try to treat some of these issues to see if some of ur symptoms lessen.

[selmaS]

  Hi and welcome to the Chiari forum.

We do have a list of Drs in Canada that the members here from there have used, and liked, the list is NOT a referral but is here for u to use to research Drs......use this link to go to the Health Pages to access the Drs list for Canada - http://www.medhelp.org/health_pages/list?cid=186

Ur symptoms r similar to what many of us have dealt with and deal with daily...even the hip pain as many of us do have related conditions like Ehlers-Danlos which affects the joints...so do make sure ur Drs rule out all related conditions b4 u consider surgery as these related conditions can affect how u feel and heal post op.