Dead memory **** Krystal

[Rylanesmom]

I told Krystal I would update everyone for her today.  She is finally in Seattle getting checked out:) She has made it to the hospital and her iv is in and lads have been ran.  She is waiting to have another ct scan (this time with contrast).  The nurse said she has a big lump that was "weird" by her incision.  She will get to see her NS today:) Let's send lots of prayers her way for the medical team treating her and or Krystal:) I will update you as she tells me to.

[selmaS]

  Krystal...thanks for the update.....

  take good care of urself .....sounds like ur family is doing a great job : )


     <3

[linnielou232]

I'm happy to hear that your home and hopefully resting.  Did they give you any advice on how to lay.  I had a CSF leak and they had me lay on a 25 degree angle to get the extra fluid to go down and not stay up in the head.  I hope the best for you and I am praying this will resolve itself.  So happy to see your still in good spirit's and kept us updated throughout the day.
Linda :)

[Shelltn]

Get all the kisses u can, those are some of the best treatments when u have booboos...just trying to make u smile even though ur feel good is broken :-( glad to know u r bk home, now get ur recovery groove on because I'm gonna need all the support I can get  & tips from the pros on here ...ok, all u naughty minds, not that kind of pros haha... I need some experienced fighters for backup...yes, I plan on being selfish when I need u guys....but for now, I'll gladly do all I can to help those in need...if my retard acting phone  would quit making me sound completely looney...one of these days I'm going to send a msg with however my phone decides to change the words just to see how silly it turns out....hehehe

Now get better, dory & patrick need us lol

Hugs

Shell

[nsalem656]

I'm still worried about you. Keep us informed pretty please.

[deadmemory]

Just wanted to say thank you all (especially you, twin) for all your kind encouraging words and support. I am taking it easy and drinking lots of water. I have felt nauseated most of the day so Jake made me an english muffin and a pomegranate popsicle for dessert :) even Jade senses I don't feel good so she crawls over to me and gives me kisses :)
I hope everyone in our chiarian family is well and having a blessed day.

Love you all
God bless

Krystal

[Rahe28]

I am so glad to hear that she has some answers at least. I sure hope that she starts to feel better soon too. Thanks so much Melody for keepoing us updated. I hope that both of you are feeling well today.

[jiggle93]

Yowza Krystal!  Girl, you are fighter!  Praying for a fast healing and hoping you get some much needed rest as you must be exhausted from today! Love ya!

[Shelltn]

I hope you can rest on your trip home & start feeling better very soon.

Gentle hugs being sent your way

Shell

[nsalem656]

Dang it's still making me worried too much. 3 hours are 1 to many.

[selmaS]

  Krystal.....have a safe trip home and rest up keep hydrated.....

   <3

[Rylanesmom]

This is text from Krystal

Thank you everyone!!! I am getting ready to get my discharge papers and drive the 3 hours back home :/ I appreciate you talking to me all day/give me support :)

[Rylanesmom]

I will Salem:)

[nsalem656]

Tell her I'm worried sick.

[Rylanesmom]

Anytime guys:) Selma I have copied all your insight too her also

[nsalem656]

She had fevers. Ok i'll never understand doctors.

[selmaS]

  Many times they will give it time to see if it resolves on it's own...but, this is a possibility for any one of us who has this surgery.....

Each NS may deal with it differently ...but may will wait to see if the CSF gets absorbed and the body stops over producing CSF or if it was a leak, if it seals....

[nsalem656]

Ok that makes sense I think. My question why is she being discharged?

[selmaS]

  This is a collection of CSF from a leak, it is a fake  meningocele, which  is a form of spinal bifida...this is a sac filled with CSF as a result of surgery...

If it was a true meningocele not only would it be found at birth with spina bifida, but most likely they would have hydrocephalus too.

Not sure if I am making sense....

[Rylanesmom]

Ok guys they are discharging her.  I know she will have ? For those that had or have one.  I told her I remember zygy does any one else please pipe in I was only able to tell her what I googled.

[nsalem656]

How is a fake (sorry I only know psuedo from psuedocode which means fake code) anything effecting her? I'm confused.

[selmaS]

  Hi...I figured as much from her description of it.....

  Thanks again Mel <3

[Rylanesmom]

It's a psedomeningole (sp?) is the last text I got from Krystal.  I will let you know as we here more she is still waiting for NS

[nsalem656]

To poster: thanks for keeping us informed. I've been worried about her a lot. At least she is in the hospital where they can keep an eye on her. Sorry to hear your not well either but I know the feeling about being tired all the time. I come home more times than not wanting to go to sleep and that's just from school. My hand surgeon is tomorrow and he drains me more than any other doctor. Ironically his the easiest appointment. Xrays bilateral yep have the xrays and than he says nothings changed and see you in 3 months.

[selmaS]

  OH how I can not stand office staff...they do this crap all the time...ugh...so sorry

Hope they get to her soon