what to do when you have surgery and get no relief?

[Twd124]

I had surgery for Chiari Malformation 1. Even though the Doctor and the MRIs say it was a success I still have all of my symptoms. I didn't get any relief at all, not even right after the surgery . I've been dealing with this for 10 years and have been told that it probably won't get any better because it's been so long. They tell me it could be something else but no one can tell me what that could be. Any help would be greatly appreciated Thank you

[selmaS]

Hi and welcome to the Chiari forum.

There are several related conditions and a few things that could have occurred due to the surgery itself....Related conditions would be Syringomyelia , POTS, ICP, CCI, EDS,retroflexed odontoid, basilar ingvagnation, ......

Surgery issues could be cerebral ptosis.....also known as brain slump....this is when too much bone is removed and your brain is falling down further then before and could be compressing the brain stem and or spinal cord.

If you have EDS and had surgery you could be rejecting the dura patch if one was placed that was not made of your own tissues.....