In need of some help regarding Chiari Malformation

[SeanMichael24]

Hey everyone i am all new to this site and just wanted to introduce myself and ask all you guys for your opinion. My name is Sean i am 24 from Nj i was diagnosed about 6 years ago with POTs. My question to you guys is i was told by a few doctors they feel i might have some level of anxiety going on at times. 7 weeks ago i woke up and had dizziness / lightheadedness and some minimal head pressure. I figured it was due to the heat in my house or possibly getting sick so i didn't make a issue out of it. The symptoms are still going on but i now have a feeling like my body is shutting down where i feel like I'm running at a very slow speed. My arms and legs legs sometimes feel a little shaky inside and get like jello along with a empty feeling in my chest. Since the empty chest feeling has start i notice i don't feel my heart rate at all even when i put my hand over my chest. If i am doing like 90 plus beats a minute i can start to feel it but i can always feel it in my neck without issue. My blood pressure has also been normal during the day and evenings when it starts getting late at night around 430am my blood pressure sometimes drops to 86/ 65. I have been back to my cardiologist about this issue and he took me off my beta blocker figuring i didn't need it anymore due to my blood pressure has been normal along with my heart rate. He did some test to make sure everything was fine such as 24 hour holter which came back normal no issues a chest x-ray that was normal ct scan of brain that was normal a long with a blood work up that was normal. I also had a full echocardiogram and stress test 6 months ago that was normal no issues. He told me give it a week or so after being off the medication to see if the issue was still here and it is. He referred me to a neurologist which i say and sent me for a MRI of my brain and cervical spine to check for multiple sclerosis, chiari malformation and some type of myopathy i haven't received the results back yet. I was just wondering knowing all the test i had done and knowing they all came back normal if this could be anxiety or some sort of stress. I don't get that nervous or overwhelming feeling typical with anxiety nor does my heart rate or blood pressure go up. Its almost like a constant feeling of slowness in my body and sometimes my head will let up. I do think about it more since i went to the neurologist thinking this might be ms like he is testing for or maybe like md or something along those lines but i don't have a family history of that. Please leave me some advice and information on what you think could be causing this issue.

[SeanMichael24]

Thank you for the information i will keep you posted

[selmaS]

  Hi and welcome to the Chiari forum,

It is difficult to say what it might be, since u already have a DX of POTS it can be a number of things related to Chiari  or not at all.....

Until u get the results of ur tests it is all speculation.

Make sure tho that u request copies of the testing on CD and a copy of the report...and do this with the facility u had the testing done, not from ur Dr as the Dr will charge u for the copies.....