I feel like I have spent thousands of hours on the internet trying to find out what is wrong with me. Not to mention appointments with doctors and specialists. It is only recently that I started thinking, hmmm. Could I have CFS?
Currently, I have been experiencing a sore throat for a year and a half. I would say that it is mild, on a scale from 1-10 varies from a 2-7. Right now in this moment it is about a 2-3. I have no idea what triggers it. I have eliminated eggs, have tried eliminating dairy, gluten, etc. I also don't drink coffee and try to reduce my wine intake. I've been thinking for a while that MAYBE I had silent reflux, due to the fact I have no burning in my stomach, chest + esophagus..
About two years ago I had migrating joint pain. I got tested for lyme, rheumatoid arthritis, MS, etc. I have had my blood checked every few months and nothing ever appears. Full thyroid panel was fine, no inflammation markers, all vitamin levels normal. Most of my joint pain is better, although my right knee has been flaring up. 2 years ago, when my joint pain lasted over a year, I have severe pain in both knees, and would wake up with pains in random fingers, my wrist, etc. I also had surges of pains as if someone was poking a bruise and then backing off.. So in the course of 60 seconds I might feel a mild pain on my left cheek.. then my right forearm, then my left shin.. each only lasting a moment.)
I also can easily sleep 9-10 hours and I never feel refreshed. I often feel like I want to nap and never feel better when I do. I have moments where I'm distracted and feel less tired.. but especially if i'm sitting down/lying down, I always feel blah. I feel physically better when I'm horizontal for sure. In case you were wondering, my blood pressure is always normal.
The past month I have had tightness in my jaw and it feels stiff to open. The left side hurts and I had a few days of crazy headaches. This has been easing up though and I no longer have a headache.
It is so hard for me not to constantly feel like I have something serious like cancer, and last week I was thinking brain tumor. But when I have no answers and constantly feel "sick" I can't help but freak out. I also have had weird pain in my ribcage/ mid back when I twist. I thought maybe it was my kidneys but it seems to only happen with movement.
Does ANYONE have any idea what I could possibly have? I'd like to hear validation that I probably don't have something serious and that maybe this could be CFS?
One more note on my history... I feel like ever since I had MONO back in 2005, I have felt off. Every couple years I seem to have a flare up of new systems. 8 years ago for years I was constantly dizzy, had blurry or foggy vision, nauseous, tired. Then it went away. 4 years ago I was bloated and in pain every single time I ate. My stool was full of undigested food and mucous. Endoscopy was normal, no parasites, etc. Eventually this went away. Now the past few years have been fatigue again, pain that started in the soles of my feet that is still there today, joint pain, and CHRONIC sore throat.
Thank you so much for reading this and providing me any encouraging words or advice!