Aa
Myocarditus 4 months ago!!!
hi there, 4 months ago i had viral myocarditis and was in hospital for a week on coronary care, i was just wondering when my heart will go back to normal because at the moment after four months of being diagnosed with the virus i get pains when i laugh or talk to fast and i suffer with fatigue its really bothering me as things i thought no problem of i struggle now bearing in mind im a 26 year old, and is/was active!! if someone could get back to me that would be great as im worrying im gonna stay like this and i dont see my heart doctor for another 3-4 weeks thanks.
thankyou very much its now becoming a less pain to deal with i'm not on any meds either, iam going to see my cardiologist on weds so i ll keep you posted many thanks.
1) Hang in there!
2) I'm in a similar situation (4 months ago, too) and suddenly got knocked out of regular life and onto disability. Luckily I'm a research junkie and I've been doing my homework. The problem with CHF as a result of myocarditis is that they really can't say how long it will take - muscles heal when they rest and the heart never rests.
People are used to treating the elderly for CHF, and people with chronic heart trouble, and they don't ever seem to "get" just how urgent it is for someone younger to get back to their life.
Did they tell you your Extraction Fraction (they probably have only tested it once so far, usually they only do it once every 6 months but I'm super pushing so I'm having my 3rd at 5 months)? Have they done a pulmonary stress test?
I really assume they have you one medication?
The most important things are - meds to keep BP and pulse lower and reduce the effects of stress, avoiding stress, BUT regular aerobic exercise (doesn't have to be a lot, a half-hour walk will do), and balancing fluid/sodium/food (the meds usually suppress appetite).
Stress is one of the biggest factors and my worst - drives me nuts feeling like I'm not / can't do anything.
I'm assuming there's no actual damage to the heart, just weak muscle because of the virus. My cardiologist said that if it wasn't for the virus I'd have one of the healthier hearts he'd seen - but my last EF was only 17%, so it's really barely loping along.
When it comes to your heart, always get at least 2 opinions - I think it's not uncommon for a cardiologist to suggest you see another one as well, usually a different specialty (I'm seeing an HF specialist and a transplant specialist who does research work).
I've heart of (younger) people going back to work in 2 months but 6-12 months is more normal, sometimes much longer. Remember most of the people treated are older with chronic problems, so they schedule things by default on a longer timeframe. Be a little pushy.
2) I'm in a similar situation (4 months ago, too) and suddenly got knocked out of regular life and onto disability. Luckily I'm a research junkie and I've been doing my homework. The problem with CHF as a result of myocarditis is that they really can't say how long it will take - muscles heal when they rest and the heart never rests.
People are used to treating the elderly for CHF, and people with chronic heart trouble, and they don't ever seem to "get" just how urgent it is for someone younger to get back to their life.
Did they tell you your Extraction Fraction (they probably have only tested it once so far, usually they only do it once every 6 months but I'm super pushing so I'm having my 3rd at 5 months)? Have they done a pulmonary stress test?
I really assume they have you one medication?
The most important things are - meds to keep BP and pulse lower and reduce the effects of stress, avoiding stress, BUT regular aerobic exercise (doesn't have to be a lot, a half-hour walk will do), and balancing fluid/sodium/food (the meds usually suppress appetite).
Stress is one of the biggest factors and my worst - drives me nuts feeling like I'm not / can't do anything.
I'm assuming there's no actual damage to the heart, just weak muscle because of the virus. My cardiologist said that if it wasn't for the virus I'd have one of the healthier hearts he'd seen - but my last EF was only 17%, so it's really barely loping along.
When it comes to your heart, always get at least 2 opinions - I think it's not uncommon for a cardiologist to suggest you see another one as well, usually a different specialty (I'm seeing an HF specialist and a transplant specialist who does research work).
I've heart of (younger) people going back to work in 2 months but 6-12 months is more normal, sometimes much longer. Remember most of the people treated are older with chronic problems, so they schedule things by default on a longer timeframe. Be a little pushy.
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