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children and Crohn's

My grand son of 8 years has just in the last week been diagnosed.He spent the last 5 days in hospital,starting a liquid diet(Modulen) for 8 weeks.His symptoms of pain,diarrhoea and blood have eased but of course his weight is still 2 kgs down .He will be seeing the consultant in 8/52.We are trying  to keep his life as normal as possible.Is there anything else we should be doing?
Regards Helly
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