chrons with negative colonoscopy?

[saradan]

hi..my doctor has come to the conclusion i have IBS ...after not showing any signs of chrons in a colonoscopy test ...I have every symptom of chrons however ..ab. pain ..bowel changes ..bloating..pain ..have had red eyes ..sores on leg that change colour when fading ..mouth ulcers..etc...my question is has anyone been diagnosed with chrons after having a clear colonoscpy?

[Niklee327]

I think you need to find a new GI doctor. It's not ok to blow off a patient. Find one who actually cares about your health and well-being. And insist on a camera endoscopy. It's the only thing that can show what is really going on in your small intestine. I just had it done yesterday and am waiting on the results. I'm fairly certain my doctor thinks I have Crohn's even though most of my tests and biopsies have come back negative. I, too, show all the symptoms (diarrhea, abdominal pain, mouth ulcers, joint and muscle pain, red swollen eyes, exhaustion...), but they haven't given me a definitive diagnosis or a treatment plan. This has been a 3 month process of every test imaginable. In the meantime, I have picked up a few books on the disease to help me get on a Crohn's diet plan to help with the flare ups (half.com has many options for less money). Maybe this will help you too? Hopefully in another week I'll have my answers. Good luck to you friend!

[Ray8888]

I have been having symptoms of Crohn's for 3 months and last year I had two other episodes with these same symptoms lasting 1-2 months. IBD blood work is positive for Crohn's. CT scan and colonoscopy are negative, but endoscopy shows inflammation. The doctor decided it was more likely it was just IBS, but I don't think I could be this sick for this long just from IBS. Any thoughts?

[stylish69]

I have been going thru all of this for over 10 yrs. I have had multiple colonoscopys and endoscopys and ct scans mri exploratory surgery where I had 4ft of my small intestines removed. I have severe abdominal pain all the time and cramps and blood in my stools and diarrhea and then times of constipation. I have severe bloating  and my eyes get watery and blurry at times. I have been hospitalized for diverticulitis in the past for gastritis they have done all kinds of stool test and blood test all negative for crohn's and all the biopsies have been negative, they did one expensive blood genetic test and if was inconclusive but indicated some kind of inflammatory bowel disease. Have been referred to another specialist and fixing to have a gastric emptying test and mri entergraphy and HBT test and another colonoscopy and endoscopy and hoping that they would just find something that would come back positive so that they would treat me for crohn and stop telling me it is just ibs , i know my body and it is more than just ibs and i have never been more sicker or hurt as much as i do now.

[Sbgirl3836]

I have been having this knive cutting pain in the middle of my stomach right behind my belly button. I have had every test done possible. Colonoscopies, MRI, Cat Scans , Exploratory surgery, capsule endoscopy. Every test I have had done comes back normal. I had the blood work done for Crohns and it came back negative. In 2012 my doctor retested me and it came back positive for a Crohns. My doctor did not want to label me with this. He said the test results should not change. My primary doctor wanted to redo the  blood work and the lab would not accept it because they said I was already labeled with Chrons and it would not change. I just want to start on the medication to see if it will help. I have read symptoms and have a friend with it and our symptoms are alike.. Any suggestions for me? Do you think  I might have it? Pain is really bad after I eat. I had a salad today and didn't know what to do with myself cause of the pain. The only thing that helps is taking Oxycodone and using the heating pad. I am open for suggestions. Please help!
Sara

[Kemper9]

Diet stress and meds are the only way.  Look up foods not to eat with crohns and you will notice an improvement immediately.  Stress also plays a huge roll.  Took some time for my doctor to find the crohns at my ilium.  Found out that ibs was also there.  Taking azathoripine,  dicyclomine,  and roids for the crohns,  smoking cannabis for pain and stress-  no narcotics or opiates.  Good luck and realize you have to gain control of your body.  Don't give up!  

[TiredDesperate]

I too am going through this for the past 4 years I have been having episodes of bloating, runs, pain in left side, night sweats and feel so unwell.  I get these large boils in my groin everytime my stomach is bad, my eyes are deteriorating, my joints all hurt, my ears are hurting and I am struggling to keep working.  This episode has been the worst I have had for a year and I am really struggling to get through it.  Had colonoscopy/endoscopy last week get results on Wednesday which cant come quick enough.  Just getting through each day at the moment is so so hard.  Cant eat even drinking water makes me feel ill.  Am desperate for some answers am tired of being told its all normal aches and pains, nothing wrong with you.  Take antidepressants/valium god knows what else I have been given but its driving me insane.  What ever is going on is cruel and makes it harder not getting a doctor to find answers for me.  And doctors do not like to be told that you want certain tests done, its taken 3 years to insist on a Gastro referral from my GP and only got it because had blood in toilet.  Am hoping and praying (unlike me) that I get some answers wednesday or I will be devastated again.

[GDP1966]

I am experiencing the same thing!  Lost 20 pounds in less than a month and couldn't get out of bed for two.  My stomach hurts when it's empty but hurts more when I try to eat and I have to take a change of clothes with me everywhere I go because taking  2 plus Imodium doesn't help!  Have received negative results for Chron's, Addison's, Celiac and more so I  must be OK, right?  Have a new Doc who thinks it might be Inflammatory Bowel Disease.  Have to have an abdominal CT scan and more blood work.  Tired of taking pain pills but I'm also tired of being in pain.  If ANYONE has ideas, please help!