Humira

[Kimberly511]

Has anyone been on Humira and what kind of result did you have? Any side effects? I am on lots of meds which are not decreasing the pain. My doctor wants to put me on Humira and I was wondering if anyone out there has had any success with this drug. I am desperate to NOT be in pain anymore. Help...Kim

[Jprins]

I used to receive Humira infusions for rheumatoid arthritis. I would have to go to the doctor's office and lay in a recliner for four hours with an IV. The last  two infusions I had, I was unable to get myself out of bed for two days from the lumbar pain. It was awful. Not worth the side effects.

[coughting]

Hilda, you might want to start a new post.  That would probably help you get more responses.  Crohns can flare at any time.  You DO NOT want to wait until you have a flare up before starting treatment.  Prevention is much better.  And flares can cause so much damage.

thx
Jayne

[hilda673]

I am 66 years old and was diagnosed with Crohn's disease a year ago. My gastroenterologist wanted me to go on steroids.  I refused since I can't afford to gain weight, however, I agreed to  take 4000 mg. pentassa a day.  I've been on it for a year and after xrays and mri the inflammation is still there.  Now he wants me to go on humira and since I'm not symptomatic I don't see the point of doing anything. I have diarreah only when I eat spicy foods or drink carbonated or caffeinated drinks.  It sounds like the drug side effects are worse than what I'm experiencing.  I'm really confused since I've read nothing positive about these drugs online or in patient information.  Is there anything positive out there to convince me to start taking drugs?

[7233]

I also am on 4000 mg. Of pentasa..I started on them in 1989 when it was a new drug.  I have been on humira for about 3 yrs.now... I don't think I'm any better then before humira..I am thinking about going off.. now my kidneys are low function...I now have very weak bones... I didn't have these two issues before humira..what the heck.. I think maybe I feel like a guni pig.I am 68.I doubt that I'm being helpful.., but,  I feel frustrated.

[anacortes]

How soon after taking humira did you noticed durg induced lupus and what side effects did you have with it and how did they find out that is what you had?

[NJ1988]

I was diagnosed with Crohns Colitis in July 2008 and I have had more flare ups than being well. In the last year and a half I have had the worst possible time because I had an 8 month flare up which didnt respond to 3 courses of steroids, in July 2011 I had a sigmoid colectomy and was given an ileostomy. I had my ileostomy reversed in February 2012 and have suffered with a severe flare up ever since. I am now currently on Humira however I do not hold out much confidence because I had previously tried it last year and it didnt work. I have tried Infliximab before which I thought was fantastic until I had a major reaction and stopped breathing. I just want this condition to get better. I have suffered badly now for a year and a half and just hope that this Humira works otherwise I will have to have further surgery. Good luck to you all with your treatment :)

[DBPropp]

I started Humira two weeks ago, so can't say much about it.  I took the first dose, all four injections, at different parts of my stomach.  For me, it hurt a lot (stung like a bee and took a while to stop stinging), and the next day I felt like I'd been punched in the stomach.  I'm thankful to the writer above who told about removing it from the fridge 20 min's before using it.  I hope that will help.  And I hope the Humira will help.