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Possible Crohn’s - Feeling Stuck

For the past 4 months, I have been dealing with excruciating upper abdominal pain and back pain whenever I eat, particularly if it’s something heavy. It usually lasts for about 12 hours at a time and it’s so bad that I’ve passed out from it and ended up in the ER several times.
I started seeing a GI doctor and have had an upper endoscopy, colonoscopy, HIDA scan, ultrasounds, CT scan of my pancreas, and tons of bloodwork done. Everything has come back negative except for some inflammation markers that are mildly high. My doctor had been suspecting Crohn’s of the small bowel since everything else has been ruled out at this point. One of the blood tests he had done was to look for IBD and it came back negative so now he doesn’t want to do any further testing and says I probably have bad heartburn. However, I’ve been on Prilosec and FDGuard and it hasn’t helped much. I’m so upset and feel like I am not being taken seriously by him. I’m not even sure if my symptoms make sense with those of Crohn’s.
I called the doctors office yesterday to request a small bowel series done since he did mention, before the bloodwork, that it could be helpful In looking for Crohn’s. Basically, I feel stuck and I don’t know where to look for help or what to look for in terms of a diagnosis.
Has anyone else had a similar experience or symptoms?
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Avatar universal
This is old, but I had this years ago. Exact same. I didnt have insurance then ,but they said sounded like an Ulcer in my stomach. They can me Medium for 6 months and it stopped. I hope you got it sorted!
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Idk how to edit my comment. I apologize. *they gave me nexium for 6 months.
Avatar universal
if it's Crohn's- you'll be going to bathroom more than 4-5 times a day, and feeling like you aren't going to make it to toilet- there will be pain, and usually mucus or blood if it's bad enough- at that point though it will definitely show up in tests- IF it's due to ulcers- those will definitely show up on upper GI tests- Try eating blander foods, stay away from spicy stuff- acidic stuff like tomatoes, lemons etc- Just eat bland for a week or so and see if that helps- if it is due to ulcer- that should help calm it down- rice and bananas and eggs are good diet for ulcers for awhile- If you suspect Crohn's - it's in hte early stages, diet can really help- but once it gets past a certain point- then medical has to step in to control it- try to avoid that- look up crohn's diets- learn what foods trigger symptoms (usually acidic, spices- raw veggies- get on fiber like metamucil daily- ) while you wait for a diagnosis-
Please note- if it is Crohn's- there will be signs of it- if there are no signs, then it's very likely something else- trust the results- at least for awhile, if symptoms get worse later- you can get it redone- but in meantime- do look up diets for bowel problems- coudl be that a simpel change in diet could make a big difference in early stages-
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