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1808278 tn?1338484942

Any epilepsy hotlines?

I just saw some hotlines for depression, for mental illness, divorce, child rearing, etc. I wonder if there are any epilepsy hotlines? My controlled seizures are also making me dependent on Dilantin, which is making me paranoid, listless, home bound, cranky, and weepy: I watched South Pacific last night and just could not stop crying. These years of taking Dilantin and Vimpat have seriously impacted my marriage, and i just cannot get hub to speak to me in the voice I  am accustomed to hearing.He is sooooo impatient! So demanding! So judgmental! We married when I was already a head injured person: if I divorce, I will get half of what we/he has, but that is not the deal I signed on for. I love him and am also very dependent on him.
   Also, my reading of the side effects of Dilantin make me suspicious that Dilantin cancels out the Premarin 1.25 HRT I have been taking since 1995. I braved cancer, heart disease, and a host of other things listed on the Premarin packages, but now, I see epilepsy may well cancel out my good skin. Good skin will take a woman FAR! I am suddenly wrinkly, crepy, dry, and my face just does not look like "me". Premarin was taken by many women of my era, in order to keep their skin in flawless condition. What's up?
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1808278 tn?1338484942
Oh I forgot that I meant to ask: is is weird that I sleep with a corduroy purple teddy bear? I swear. And our dog sleeps with us, too. The dog, I understand, but the teddy bear?
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1808278 tn?1338484942
I marched my snarky *** into his office, with a ream of print outs telling him about what Harvard, Case-Western and UCLA's med schools said about the side-effects of Dilantin, and Vimpat. I just TOLD him I was  NOT going to take those meds anymore......(I'm kinda-sorta a she ***** from hell, and prior, was a she ***** from heaven. So, Today I only took three of the Dilantin, and I have not even taken ONE  VIMPAT. And guess what? No seizure activity, no crazy *** moodiness, no bad dreams. And today my dentist told me that Dilantin is to blame for needing a BRIDGE. And a root canal, and two crowns. TWO? What does my dentist plan to GET for that work? I'm suing the doctor who gave me those meds without any warnings about side effects. I'm a hot damn lawyer (prior to seizures) and I plan to make a come-back. (And all of my friends from law school are wayyyyy into messing with him, too. Dilantin has been around for, what, 80 years? That is waaaaaat long enough for one doctor to have learned about side-effects! BUT when I finally got a blood draw ordered, that test said I had toxic levels of the Vimpat in my BLOOD. My body? My temple? (aw, shucks, I need to sleep: stopping just one pill a day makes me so hyper, which is way closer to who I used to be). But not drinking any coffee, for sure! Viva freedom. Viva not over medicating.
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Avatar universal
I'm so sorry you are going though this.  I think you should probably talk to your doctor about how you are feeling, maybe ask for a referral to see a therapist.  Maybe you can even take your husband to some of your therapy sessions. Maybe you should see if you can switch medications.
As far as a hotline I know there is one, but I don't know too much about it.  Good luck and keep us updated.
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