Aa
Aa
A
A
A
Close
Avatar universal

Finding the solution ...

Hello.

First, my english is not so good so sorry for that.

My name is Allesandro and I live in Slovenia (Europe). 27 years old with epileptic, as far we know. Sorry if I am in wrong section, but I do not know how to go foward.

Symtoms:
1. In the middle of walk I am strarting to "freezing". I can not move (or few steps top), can not speak, but I'm conscious.
2. I yust fell down vertically, not sideways. This time is blank, like I fall a "sleep", not conscious. This comes sometimes after freezing and I "wake up" few moments after hitting the flor.
3. This symptom is similar as the second (2.), but here I am conscious and barely sensing the sourundings, loose muscles, like my neurologist says, that I am in "sleep" mode. After that I can remember only crumbs of everything. Duration of few to ?? seconds.
4. Hard shaking of the head in all dirrections, faster breathing, "changing" color og the face, very tense neck muscles. At the end shaking it stops momentarily. Sometimes at the end head punches back hard. Duration of few to about 10 seconds.
5. Deeper and deeper breathing, changing face color. Unknown duration.
6. Sometimes is paralyzed all bellow the neck (not moveable). Duration is from few seconds to one hour or even more.
7. Paralyzed only legs (not moveable). Duration is from few seconds to one hour or even more.
8. Always sleepy and tired.
9. Not so good memory.

In Belgrade Serbia I was diagnosed with: Epilepsia G40 Hypertension arterialis Depresio. I went to few neurologists, but they do not know what is wrong. Now I am stationared at one. I went to few psychiatrists claiming, that my psyhic can not be source for most problems. In few months it will be 5 years of hardest problems. My fizical movements are very limited and weather sensitive. At summer, I can fizically move (bicycle, work arround the house, ...) much more than in winter (some play with a dog an that is it). Either way, even in summer, manny days are verry limited.

Epitologist sended me to one day of EEG, video surveillance, provoke an seizures, ... but waiting period is about a year. I am using pills Tegretol CR400 4pills/day and Tegretol 200 1pill/day. Tegretol stops the strong Generalized seizures.

This is base of my story, what is happening. I yust want to find solution. It is almost 5 years, that I am at home.

Bye, Allesandro.
2 Responses
Sort by: Helpful Oldest Newest
Avatar universal
Hy teddy.

I was to the hospital few times yust for check to neurlogogists. At the "begining", few months less then 5 years, hospital refused me to accept for threatment there because "my problems are going too far back". All started with strong pain in sinus area at 2001, I can not rest in sleep from 2004, always tired from 2006, strong pain starter at july 2006, neck and head pressures/pains from october 2007. From october 2007 till now, I live with parents, going to doctors and hopefully it will be bether in a next couple of years. Basically I am happy person, love to work with computers, as far health gives me, I learn for web programer and designer, and so on.
Helpful - 0
Avatar universal
I'm from the US, so I don't exactly how things work where you are.  If this happens you should probably go to the hospital,  They can get this stuff done for you a lot faster.  If this is going on you need to get this taken care of so you can go back to living a more normal life.
Helpful - 0
Have an Answer?

You are reading content posted in the Epilepsy Community

Top Neurology Answerers
1780921 tn?1499301793
Queen Creek, AZ
Avatar universal
Minneapolis, MN
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease