Help!!!

[lotsoflove67]

I was diagnosed yesterday with left tempral lobe "problems" and told i had Epilepsy. However, i have not suffered any seizures, black outs or loss of consciousness (sorry about the spellings folks)

16 years to the day i had a car accident and was badly battered in the accident. 3-4 years ago i started to notice foul smells on occasions (thought i was going mad, visited the GP who said everything was fine) I also suffer bouts of not being able to find a word in my head during a conversation. I have likened this to a person who has had a stroke and cant remember the words. (mine is only occasionally and not always the same words.)

The consultant whom i saw yesterday said that the smells were auras and that loss of the wording was perhaps a build up to a full blown seizure.

The initial response was to remove me from the car, give me tablets and wait and see. I argued my case and am having a repeat MRI but had a EEG 6 weeks ago and this is the results from that.

Has anyone else experienced the same symptopms as me? is this epilepsy like there saying? Help me understand before i go mad.

The most frightening thing for me is i work with people who have epilepsy, see full blow Grand mal and tonic clonic seizures each day and cant help thinking is this where i will end up.

any advice will be good advice, thank you xxx

[2sharpsintx]

There are natural helps you can take in lieu of medication if you want to avoid it. Not all epileptic seizures are grand mal.  I've had epilepsy for 22 years, and I control mine without medication. Sometimes, people have MORE seizures on medication, which was the case for me.

Here are some great tips:

AVOID CAFFEINE AND ARTIFICIAL STIMULANTS - the central nervous system doesn't need the aggravation

MAKE SURE YOU ALWAYS GET PLENTY OF REST - the body needs adequate sleeptime, and epileptics ESPECIALLY need it

AVOID FLASHING LIGHTS

LISTEN TO YOUR BODY - I always have an aura before a seizure.  I begin to feel weak, nausea sets in and I just begin to go limp.  During my seizures, I cannot respond to any voices, but I HEAR EVERYTHING.  

MAKE OTHERS AWARE OF WHAT NOT TO DO - people tend to overreact and panic. This only makes things worse. Tell them what to expect...if you know yourself, and ask them to simply make sure that your vital signs are OK.  People freak out when a person's eyes roll or when their body jerks.  This was all completelly normal for me, and it just had to run it's course.  Still does when I overdo things or get too stressed out.

EAT RIGHT & TAKE GOOD SUPPLEMENTS - People with epilepsy should keep certain supplements on hand.  Calcium, B-Complex, EPA/DHA (fish oil), SOY LECITHIN and VALERIAN.  These are all great for neurotransmitters and for handling stress.  The Valerian is good to help you relax during a seizure.  Grab it and take it AS SOON AS you begin to have an aura.

TALK OPENLY WITH YOUR DOCTOR, CHIROPRACTOR, ACUPUNCURIST or other HOLISTIC PRACTITIONER.

Medicine for seizures is VERY HARD on the liver.  Don't accept a life sentence on those drugs if at all possible.  Look for natural solutions.  They are out there.  I highly recommend Shaklee supplements to people because they have changed my life.  They are pharmaceutical grade & the science behind them is superior.  There website's ABOUT SHAKLEE tab is very informational.......worth a look!


GOD BLESS YOU.  I hope this helps, and I hope it just all goes away.  If not, just become as informed as you can on the subject.  Ask questions, and always question answers!!!

[dualdis3]

I remember what my first big seizure like episode was after my first head injury in 1975. I was sleeping in my bed with my ex-wife in Germany in the middle of December with snow every where you looked.  In the middle of the night without warning, I awoke suddenly. I was not breathing, no air in, no air out of my lungs. I jumped up  and opened the window hoping the fresh air would start me to breathing again. I rumbed ice snow in my face, I could not feel the cold. I sank to the floor, I my brain felt like it was turning around inside my skull cap. I develope tunnel vision and went went out. I awoke the next morning and my wife told me a was kicking sometimes during my sleep.  She left me laying on the floor where I passed out until morning.  Believe me it was scary as heck.  This first seizure-like episode took place 6 months after my first big head injury. I have never known a moments peace after that time;  I have grand mal seizures now and I am house-bound as well. I am a 54 yr old male.

[gnightmoon]

Wow! This sounds exactly like me! I had a car accident 15 yrs. ago and my seizures have resurfaced. Mine were confirmed by EEG. I also have MS but that's another story. According to my neurologist who specializes in epilepsy this can happen. I was frustrated having to go on medicine again but better to be safe than sorry. Try not to worry about what "might happen". I work in a hospital as an almost RN (still in school) and worry about this too. I guess though if we are going to have a seizure, we are in a safe place! Peace to you! If you need to vent- just post! Take Care!