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988936 tn?1249090542

New to Epilepsy

I was diagnosed with epilepsy in Nov 2008 when I was 26. MRI's came back showing a small fatty tumor in my lower brain area. (I can't remember which area) I am torn on whether or not I want this to be the cause of my epilepsy. I feel that I haven't had a good neurologist yet. They seem to not be concerned with it. Yet I have had migraine like headaches, dizzy spells, and such. I just don't know what to do.

On top of that I have been prescribed Tegretol. I think I started having auras the other day. I just get a brief feeling where I actually have to sit back and take a deep breath. I feel so detached from my body and sick to my stomach. Though I have never actually gotten sick or had a seizure. I'm wondering if I should switch my medication.
I'm just hoping someone might have some suggestions for anything I have brought up.

Thank you for any advice.
2 Responses
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988936 tn?1249090542
Okay well I can't say it makes me feel better. But it does help. :) I'm still in shock about the diagnosis. I've always been very healthy. Then this came out of left field.
Take what your dealt I guess.
Helpful - 0
912467 tn?1282673511
Hi i have been epileptic for many years, diagnosed when i was a baby. I used to have many seizures and at 25 had brain surgery to try and help. Since then in 4 years i don't have seizures no more but auras and migraines quite frequent. As you describe them. I take the deep breaths and focuss on something. Can last up to minute or longer.
Tegratol is a drug which reacts either great for some or in my case it was the worse drug i had ever had. They tried me twice on it and both times had seizures.
All i can say is if you are concerned about Tegratol i would tell your consultant, sounds like it isn't making you well.
                 Good luck and take care
Helpful - 0
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