One week of

[TwitchyOne]

Several years ago, during an outpatient EEG, they noticed some Absence seizure type of activity. I wasn't allowed to drive for several months - I cannot recall the meds used then. The neurologist had me in the hospital's EEG Unit for over a week and nothing showed up... There are times when I cannot tell if I'm awake or dreaming. Sometimes everything freezes like a photo, but I can hear people talking around me and I become confused. When I come out of it I'm very tired. I get auras like tunnel vision followed by a deep humming sound, slowed heart rate and then I black out.

Now I'm having a lot of episodes and will be staying in the hospital again for a few days for testing and they're taking me off of Depakote and Neurontin to try to trigger seizure episodes. Because of personal issues I've been having recently, I'm afraid they're going to say it's all in my head! Psychogenic Seizures, etc. I am dealing with depression and anxiety right now, and I do have chronic headaches. My auras for headaches/migraines are scotomas increased sensitivity to odors, etc.

Has anyone experienced these type of episodes, or have had similar EEG experiences where they have a problem and nothing shows up after being hooked up to the EEG monitor for a week? Thank you.

[TwitchyOne]

Sorry about the "best answer" thing! Still trying to figure out this stuff and you both had great answers!!! :-)

Thank you, Flipper and Shinystare230, for replying to my post. It's frustrating when you know there's a problem and because they don't "see it" they immediately suggest that it's all in your head... :-(  I hope they find out why you're having episodes, Flipper. It must be frustrating! I've also done the EEG halter monitor at home twice and there were only a couple of "questionable" things on the results.

ShinyStare, you have been through a lot, too! You are so lucky to be walking! Oh my!! I hope you're doing better and getting the right treatment. I do keep a diary of migraines and seizures. It does help, but sometimes they're telling me it's all migraines, but I show them the distinct pattern between the difference between my auras for migraine and seizures and the sit there like, "Hmmmm...?"

Thank you both for your input. I will take your advice and keep positive! <3

[flipper336]

Twitchy, you are not alone. I have all the type of episodes you are talking about and some more. I have also been in the EEG monitor unit for a week and nothing has shown up. I have also been told that I could have psychogenic seizures also.  Keep you chin up! you are not alone.