PLEASE HELP! MY 4 MONTHS OLD BABY HAS SEIZURES

[PleaseHelp94]

My 4 month old daughter has epilepsy. She has had it since birth but they diagnosed her with it when she was 8 days old. We have taken several trips to Childrens Hospital of Pittsburgh and every time seems like it is doing any good. She is now 4 months and she went 2 months without any seizure activity up until about 2 weeks ago, at the time she was on phenobarbital but she seemed to have broken through the med. When we get to the hospital they do as many tests as possible but the whole time I was there I never got any answers to my questions.....The day they discharged her I told them she was not normal she was not picking up her head or being active at all.....the next day we go home and not even 8 hours being she has another seizure (most of her seizures last up to a half an hour) so we went back to pittsburgh, admitted again and discharged 3 days later. The Neurologist had said she had Calcium Deposits on different parts of her brain, not only that but her head circumference is smaller than normal. Please if anyone has any answers to how maybe these calcium depoits developed please HELP!!!!!!!  

[Lee9709]

Just for more information, I discovered this when researching epilepsy for my 16 y/o.. Vitamin B-6 Dependent, causes seizures in newborns and infants, I know it seems way out but it is a medical condition....Look it up.

[KarsonsMommy481]

hello,

my son is now 3 and 1/2 mo and has been diagnosed with calcium deposits on his brain. the dr said it was due to a stroke because of lack of oxygen in utero because the cord was around his neck. i havent noticed and siezures yet  but he goes to a neurologist next tues. i cannot find any information on babies with this. i was wondering how your baby is doing and if you have found any information. i was told he was going to be a challenging baby with special needs but thats it so far. i really want to know someones point of view who has been there. please let me know. thank you so much we are worried sick.

Sara

[Tesro]

My Grandaughter who is 7months old has similar symotoms and has just been diagnosed with West Syndrome. This is a rare form of epilepsy and is more rare in girls than boys. I hope this helps.


Take Care.

Tess xx

[Fable]

I can't help with the calcium deposits, but my little girl has had seizures since birth too. It is so frightening, and I know how alone you must be feeling. It's not unusual to have break through seizures, it can sometimes take a while for them to find the correct meds. I think you have other issues to look into too, did they not give you any indication of what they thought was the cause of the small head circumference? Did she pick her head up before the last seizures? And was she active before? There are meds out there for you to use at home to control the seizures, which you need to get some advise about, and above all, don't stop doing all the normal things you would do with her. Stimulate her, play with her, and keep speaking to people. Even if you can't get all the answers you need, it helps to speak to people in the same situation, even if it just gets it off your chest.

Take care

Fable xx