Suggestions

[Leonetta]

I have been diagnosed with a Partial Complex Seizure Disorder for almost 7 years and no one knows what is causing them.  I have been to specialists in Minnesota at Mincep, tried on several medications, but nothing seems to work.  I had been going to one doctor for 4 years until she told me she could no longer help me and referred me to another neurologist.  Well now I'm taking Dilantin (was already prescribed) , Gabitril, Celexa, Klonapin, and Darvocett for the migraines.  Well I have been on this for about 2 weeks and have been seek with vomiting/nausea for the last week and on top of that had another seizure. Is there anyone currently taking the same medication and it has been beneficial?  Also another question did anyone else's eyesight get bad after they started having seizures and wearing glasses and vision seem to decrease?

[jaimekirk]

Had a stroke at 9 months old.  After a year of being on phenobarbital his neurologist took him off due to his EEG coming back normal.  Now almost 4 years later he is having seizures again.  We are now on the 3rd different medication.  So far I am having luck with this medication.  He was also on Tregratol and it was making him pee and #2 himself.  Now he is on Leveitiracetam 100mg/ML.  I believe it is working, but so hard to tell. It's been a struggle with learning and concentration with my son.  But as side-effects go this drug doesnt' seem to have any for him.

[Leonetta]

Well thanks for the (two cents), but your right about the medications not really allowing you to think for yourself, because they all have some sort of side effect.  But I found out on my own that my neurologist had removed phenobarital too fast from my medications and I started having withdraws from the medication, cause it's suppose to be removed over a 2 week period, mine was 5 days and I was sick as ever with n/v.

[dualdis3]

Sometimes the seizure medication makes our eyes appear worse than they really are. Let me explain it this way.  When I was on Tegretol, I had many diagnoses for glasses and each year the prescription got worse and my eye sight seemed dull  and in fact the whole world seemed dull to my senses.  It was like looking at the world with someone elses eyes not my own.  While walking around the sidewalks, I sometimes came upon stop signs or red lights telling me not to cross the streets but, in my mind while on Tegretol, I went right ahead and crossed the street anyways. I had no sense of danger what-so-ever. My mind and eyes were clouded over to the extent that I really did not care wheather my actions got me killed or not.  Sometimes, the anti-seizures medications really do not allow us to think, see, or behave normally.

We either elect to keep taking these drugs for our seizures or we elect to stop taking them and go back to having seizures.  With some people having the siezures and dealing with their side effects is better than taking all those Anti-Siezure medication and their side effects.
Alll people take siezure medication should have someone watching out for and over them while taking these medications.  Well, that is my opinion or two cents worth.