West Syndrome

[teach2mum]

Has anyone heard of West Syndrome? My little girl was diagnosed with it at 10 months old and she is now being trerated with steroids to stop the seizures ' jerks' before they cause any more damage. Would love to hear from anyone with any info

[RupeshKR]

Hi Ross,
my baby too is suffering from West syndrome. He is 7 months old. It all started when he was 6 months and we took him for immunisation. After the Vaccine he had fever and was crying incessantly. though the fever went in  1-2 days but the seizures started. He is taking Sabril 500mg ( Vigabatrin) , valparin  and Blong since last 3-4 weeks but not much  relief as yet. What was the medicines you used. And  how much time did you take to get over it.
Rupesh

[RossCow]

Hi there, I had West Syndrome when i was a baby and i have turned out in perfect health. I had the illness from birth until about 2 years old. I have no medical problems and i havent had a seizure in close to 18 years now.
I'm sure everything will turn out fine with your baby as long as you keep getting her treated :)

[Braul]

My son had west syndrom they where controled with topomax. They went away at almost two years old. He wasnt able to sit or roll over because of it asswell. He did fine.

[raviazaire]

hi, how is your baby doing now...my son is also diagnosed with West syndrome and missed all his developmental milestones. he is 18 months old now but still not able to sit, see, roll etc.