I am so sorry ,I know it is hard when they can't tell you what is wrong with your child.
Have they done a MRI on your daughter? if not they should have done one and they should also put your daughter in the hospital for a video EEG .They should be testing for more than four things.They should be looking at everything. They should also do a EKG.
I would also have them do an ultrasound .
Has your daughter ever been on any other Medicine that could be causing her to have side effects ?
And yes if you have to change Doctors to get the help for your Daughter then I would do it,you are the only one who can fight for her ,We has parents have to fight for our children .
I pray a lot and I will keep your daughter and you in my prayer's.
God bless and stay strong.
I have a child 16 years old April who has had 47 siezures in the past two years she had an operation for her appendix in late 2007 and in September of 2008 she started getting these seizures. She has always complained of pain in her abdomin on the right side and one nuerologist told me she was faking it looking for attention, I went to another nuerogilist for second opinion he suggested a cardio specialist, so we went only one out of 4 tests came back positive, so between him and GP they decided to try blooding thining meds and they are still happening...Should I see a pedeatrician and suggest this condition, if anyone can offer a suggestion please could you help a desperate mother of 4 I need someone that can help me as everyone just keeps saying we don't know....
Concerned.......
The doctors have told me that a stroke can happen with anyone who has seizures.Very scary. The doctors can't tell you if the stroke came first or the seizure caused the stroke?
Do you know if there was any seizures he was having before the stroke came?There are so many kind of seizures out there and some you wouldn't know a person was even having one.
My son took resipdral and a new doctor we saw ,said that residal is not good for people who have seizures.
I now give my son vitamin b6 and omega 3-6-9 and this has helped him stay calm and learn better.You may want to try this with your son.I would tell the doctors before you try them ,the doctors should be ok with them.
Hi.
First I must say that I am not a doctor. I was diagnosed with abdominal epilepsy when I was 2 years old. I am now 29 and I have not had an attack since I was 20...I don't know if this will help at all, but when I was born I wasn't breathing and the short time that went by with out oxygen caused some brain damage that led to my abdominal epilepsy. They said that I would have it all my life or I would grow out of it and so far so good. Your son might have gotten it from the stroke.
Best wishes