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[sue935]

I have grand mal seizures, mostly happening to me at night, I am 48, mother of a 14 year old and living alone.  We usually do okay, but I see my neuro every 4-6 weeks, Tegratol 100 mg 3X per day.  My seizures are terrible, I feel like I've been hit by a line backer from the NFL when I wake up from them.  My whole being hurts, I bite the same place in my mouth, and my tongue hurts so bad because it's swollen all the time, and I keep biting it by accident.  I am going through this alone, with my teenager, and I feel so useless to her.  I sleep for hours, am nauseaus all the time, and the light hits me and causes me to either have a slight seizure, or a migraine headache.  Is there anyone out there who goes through somehting similiar, and if so, could you share with me how you are doing?  Thanks

[parker776]

sue, sorry to hear of what you are going through.I too have grand mals, biting my tongue is a frequent problem and it is full of scars, notice how nothing tastes the same.I live alone and usually have no one there to help me during a siaezure or after.I wake up on the floor ,with a little pool of blood on the carpet and sometimes rug burn on my face.It is very scary.I cant keep a job because I can never seem to make it through my orientation period without having a siezure.Even if the siezure doesnt happen at work, i have the after effects of memory loss and disorientation that can last over a week for me.I just started today looking through the internet to try and find out if i have any resources besides having to go on medicaid and/or social security. Im only 40 years old.This all started for me after I had a tumor removed from my left frontal lobe about 5 years ago.I wish i could give you some help but all I can do at this point is share my story.Best of luck for and god bless.parker776

[melvinkathlene]

I feel for you!! I know how you feel but don't feel useless. I have lived alone taking care of children, with seizures, they helped me and I felt horrible and useless too but you can't that adds stress. You are having them at night probably because you are run down and stressed. You need to find a way to releave the stress and get a lot of sleep if it means taking a long nap during the day. Do something you enjoy everyday. Do something with your child to show them they are important also that will make you feel good as well. Excersise a little each day that helps and pray. I feel for you. Good luck! If you ever need any help with anything their is the epilepsy foundation.

[brainpain]

hi sue, i have grandmal seizures to. i use to have them only at nite when i was sleeping. i would wake up so sore and tired all i can do is sleep. having grandmal seizures takes a toll on our bodys. i have so many scars in my left jaw and tongue . i had my back teeth filed down, so they wasent so sharp. that has really helped on the cuts. my seizures last for 5-10 min now. i do sleep for hours after. i have 3 kids and i feel useless sometimes to. i have warning signs  before i have a seizure. i take 400mg dilantin a day.if i get really stressed sometimes can bring one on. i had a grandmal while driving going to moms for thanksgiving, i was so stressed out. so far my seizures are controlled. do you have any warning before you have a seizure? i take my meds every nite and im doing very good now. i hope this helps,brainpain