Temperlobe seizures

[kjcs34]

Well, I have been a patient of Cleveland Clinic for many years, I am not sure if you are aloud to look at my file.  I have an epidermoid braid tumor on the right side of my brain.  It was found after and auto accident in 1995 while having a MRI on my neck.  I have had no symptoms until 4 years ago.  Our city had a bad flood and I was sandbagging for 3 or 4 days.  (I had a fusion at L5-S1) so I am smart and was on my knees while sandbagging.  My neck and shoulders are very sore. A couple of days after that, I was driving down a highway and something was happening, I just knew that I needed to pull off.  I felt better after 20 min. I finished driving when I arrived I was so tired and worn out, I laid down and went to sleep. ( I assume that was my first seizure) I did not drive home. That is when I started going to Dr.'s MRI's and GOD knows what other test.  I went back to Cleveland several times, first I was told it wasn't the tumor, then oh maybe it was.  I then went to Mayo Clinic, I seen the head neurosurgeon, he tells me that my seizures are NOT from my tumor!   They did many test thinking that the water from the flood may have caused something.  All negative.   I have an average of  3 seizures per week.
I was in a rear -end collision on May 5, 2008.  I was told that I had two fractured vertabrae in my neck one possible old (possible old makes no sense to me)  I was put in intensive care overnight, I spent 2 more night in the hospital.  I was in great pain, I had 4 seizures the day of the accident one at the seen.  (I laugh when i have my seizures they last 45 sec to 4 min) OK now my question is this, I have been wearing my soft neck collar since May 7th.  I have not had ONE seizure after the day of the accident!!  I have always believed that there was something wrong with my neck that was causing my seizures.  This makes me believe it.  Every time I take off the collar, it takes about 30 minutes and I start felling the numbness start in the left side of my face top of my head my nose and my gums. Then down my left arm.  After I put the collar back on it takes about 30 minutes and it start going away!!              The tingling and numbness is part of other neoro symptoms that I get when I have aggravated my neck (that started 4 years ago), which I haven't done for over a year.  My question is what can the collar be stopping, nerve pinched?? I have no idea I only know that for the last 4 years I have been telling Dr's all over the country that the cause was my NECK!!  I feel that this proves it!!   What do you think.

[kjcs34]

Hello,

I had an MRI, CT scan and several X-rays of my neck. MRI and Ct of the brain. While in the hospital.  I was just at U Of Chicago, where I see a neurologist that I love, Dr  Maria Baldwin just days before my accident and had MRI of both neck and brain.  She wants me to have an MRA  and a CTA.  Hopefully the Dr here will order them, insurance reason she can't order them.

Thanks
KS

[Avinash R Kakade]

Hello,

Seems you have been through a tough time in last few years. Feeling sorry for that.

I am of the opinion that if you feel better wearing the collar then please do continue with it. A MRI of the neck region will clarify whether you got a nerve entrapment. If you have a fractured vertebrae as you say, the collar is definitely indicated and is doing you good.

May be a MRI of cervical region will be of immense help. Get in touch with a neurologist and get MRI done and keep me posted about whats happening with you.

Regards.