weird EEG results

[dudgeon]

My 5 year old son had what the doctors call a BIG seizure, he had an EEG, MRI with contrast, and the neurologist said there were spots on his brain that explained his seizures and his stuttering. The EEG also showed significant signs of seizure activity. He was put on medication. He didn't do well with it and the Dr. turned out to be a real jerk so I took my son to another Neurologist, they did a short eeg, said it was normal, then they did an abulatory one and it too was normal, even though my son clearly had several seizures that followed a very specifc pattern. How does one neurologist see something as well as the radiologist and then the next say there was never anything wrong with him. Epilepsy runs very thick in my family. I have heard my son describe these as bugs crawling, dizzy, scared, confussed. All very typical real seizures. Does anyone know how such a thing could happen? He is now taking Lamictal and doing a lot better I just don't get it.

[KixNgo]

agree with ardensmom, I am 44, and as a child i had sleep eeg's to show massive peti-mals, as i grew up they changed to grand malls, yet appear different, when i was a child, they made me stay up 24 hrs prior to eeg, when i got older, they only did one sleep eeg, and a few  (in office)eeg's. It seriously took me having one right infront of the docs, following an unrelated surgery, for them to one, believe me(and my husband, etc..) and two, diagnose grand mall, and send me to a mayo clinic specialist, who in return found i had the 2nd only in his carreer with this type of sz'z. persiverre, you will win.

[ardensmom]

My daughter with rolandic epilepsy had 2 normal EEG's until the 3rd one- she fell asleep during, then her seizure activity showed itself. Persevere, ask for follow up on the MRI. EEG's aren't always going to show anything.