what happens when cannot tolerate meds?

[grungema3]

Hi, all, complete novice here. Need input please. Grandson, aged 8, on a med cocktail. One of them is making him too tired, irritable and starving but can't eat all the time as he is a big lad anyway, so more irritable, vicious circle. Sorry, don't know med name. Daughter (his mum) been told like coming off heroin so he will experience some cold turkey. Having half his usual dose from today. I can't bear to think of my lovely boy going through such pain. Has anyone any idea what I'm talking about and if so why are they allowing this without an in-patient admission?
Thank you.

[grungema3]

Thank you all so much. It really helps to talk to people and youor advice was so helpful. I'll try and relay the info to my daughter in the most tactful way - at least I feel like i'm helping.
Love to al of youx

[crystalslug]

I was on Epilim Chrono for Epilepsy, I came off it and changed to Keppra as I found out Epilim Chrono is also for Anorexics! Explains why I never felt full until my stomach. But I would say try to encourage him to drink more fluids when hungry.

[grungema3]

Thanks for your reply. Most frustrating is that my daughter won't let me in to this illness, won't let me know the names of meds or anything. She may be protecting me or pretending it's not so bad (to herself), or, because she knows I'll look up and investigate, maybe she wants to keep her middle baby close and not have anyone else interfering.
I am grateful for your reply but I'll just have to watch and listen, be there and be quiet. This is not me but I'm practicing!

[theasian]

they most probably trying to see if he can tolerate other meds without so many side effects. i'm on epilim, you just gotta be careful with that stuff. make sure that the levels in his blood are checked regularly otherwise he could suffer from valproate toxicity and i know frm first hand experience that that is not a good experience

[grungema3]

Thanks for your reply. Now 3 weeks since they have halved that med. Also high functioning aspergers. No big kick offs but he still looks so drugged, and still eating for england. Don't know why they put him on different meds, was doing ok on Epilem??, think that's the stuff, Think he has other med as well now, or instead. Anyway, thanks for your answer, just have to hope they can find the right balance. Take care  

[theasian]

alot of anti-epileptic meds can make you feel tired and irritable. meds that contain sodium valproate can make you feel hungry, at least that's what it did to me. the tapering off the meds doesn't have to be done inpatient, as long as he does exactly what the doctor says it should be fine