Did u ever get a correct diagnoses?
I read that. If where you are going is working great. If not go elsewhere for a 2nd opinion.
I should've clarified. I go to the University of Illinois.
Sokes23 consider an evaluation at U of Iowa, Dept of Ophthalmology or Mayo Clinic in Rochester. Bother are world famous for neuro-ophthalmology JCH MD
This is same thing that you are all talking about is happening to me and I do not know what to do with my life. I am a sophmore at the University of Illinois and I can't even stand to see anymore. My whole entire life is attached to this eye problem that out of nowhere now I am seeing a psychologist and I contastly am getting into fights with my girlfriend. Please if you hear anything about taking care of this tell me. I am praying to the lord almighty savior that my vision is not destroyed.
Hi...i know exactly how you feel...ive had the vibrating/jerking vision for over 10months now and have been pretty much house bound ive stopped driving and working as everyday tasks like you say are difficult but i get the dizziness with it and feel off balnce when i walk round as the sensation is making everything difficult...ive had over 24 injections of botox but had no success so my opthalmologist reffered to me to a professor in oxford eye hospital UK a opthal-neurologist....i have the vibrating vision but also when i half close my eyes they twitch uncontrolably he said hes never seen anything like it before as he said it was so fast so they took some blood to test for k-channel gated potassium channels or something along those lines and they came back normal so i had a epg where they put a needle round your eyes and test it using an electrical frequency and the results came back abnormal and showed a frequency which is limited to a condition called neuromyotonia ( isaacs syndrome) but mine is only affecting my orbicularis oculi muscles...some people get it in there body but mine is isolated to my eyes....i understand how you feel its horrible and i felt like i was going nuts as when you look at my eyes they look fine but i know there not...in regards to treatment at the moment im on a course of epileptic drugs called phenytoin but ive been told they tke at LEAST 4 weeks to maintain a level in your bllod so i wont see results for 4 weeks now im only on day one of week 3 n not noticed anything but not expecting to yet...i cant tell you how much i want these to work im nly 27 and my life has changed dramatically...ive also been referred to another neurologist which is closer to me than oxford so just waiting for my appointment to come through which should be in the next few weeks so i guess ill see what he suggests if these drugs dont work....its so frustrating and i think the symptoms of SOM are definately what ive got to ...are you on any madication to try and resolve it? if so would be grateful to any feedback of any meds you have tried as i need to get my life back and soon im on anti depressants as i cant cope with it...its always there even when i close my eyes i can feel/see it moving..do you have this to??? i to do not know where it has come from the doctors dont either they say the cause is unknown which is obviously frustrating as if we dont know how we`ve got it then how do we know what not to do!! be great if you could stay in touch as i though it was just me suffering through this horrible time....keep in touch
Honey :) x
just wrote a long post back to you but not sure where its gone :(
OKay long story short. I have been to numerus doctors, the last neuro opt. diagnosed me with Superior Oblique Mayokmia a rare eye disorder causing your feild of vision to bounce, jerk, or vibrate ect etc etc.. I have done research on meds. botox, surgery etc. does any one else have S.O.M in this form? If so any words of wisdom advise experences etc.. I have been dealing with this for a short time about 2 mounth now. It has deffinatly changed my life my vision is 20/20 in left and 20/25 in right the S.O M has effected my right eye and from my understanding and research it usally only affectes the right eye and there is no real medical explenation as to why this disorder happens. Never the less it seems to be worse some days or just okay on others. Mornings are really bad have hard time driving some times or just doing every day things. Any one PLease help!!!!!!!
This is not likely a glasses problem at all. If its persisting and worsening then seeing a neurologist/neuro-ophthalmologist is indicated.
JCH MD