This is a neurological problem. Please see an neuro-ophthalmologist.
Dr. O.
I'm not a physician or an eye care professional, but neurologists generally take the lead in muscular dystrophy cases. Perhaps one of the contributing forum ophthalmologists will shed additional light. You might also want to re-post your question in the Expert eye care forum..
Good luck.
Could it be Optical muscular dystrophy? and if so what Dr does he then go and see?