Hi AuntieM2,
I believe I may have written to you before. I (finally) got an appointment at the Univ of Michigan with Dr. Cooper. I was on the wait list for like 7 months! He is also suggesting Primary Trochlear Headache as a suggestion for my pain. I'm going back on July 24th to get an injection of a numbing agent and clonodine. I live in the metro Detroit area by the way. Would love to keep in touch about our progress. My email address is: ***@****
Thanks, Jill
Sorry for your wife's pain. I have been diagnosed with trochleitis also and have wondered about hormonal involvement--maybe Dr Hagan could address that question?
I have tried a lot of medications and steroid treatments. Steroids did seem to alleviate the pain some. The treatment that has given me the most relief so far is injections of lidocaine and a steroid given at University of Michigan Pain Center. I also had botox injections that helped alot but are very expensive.
Sorry no suggestions.
JCH MD