Do you have a job outside the home?

[Lola_mama]

Do you have Fibromyalgia and still manage to hold a job?  Feel free to leave comments about what your job is and how you cope.

[RobinHood70]

Thanks for the comments, VaBreeze, but I'm in Canada, where the rules are a bit different.  A simplification of our rules would be:  If you *can* work, you *can't* get disability.

[VaBreeze]

RobinHood - I understand what you mean about thinking of disability while you are still trying to find work.  It's fearful to not know if you can meet your bills and feel that you have to force yourself to work.  If you have a clear dx of CFS from a doc., then you may want to file for Soc. Sec.  In order to do this, one would have to be out of work for 5 mos. and have a disability that is expected to last a year or more.  If you are approved, you can also work at the same time but there are limitations on how much you can earn and still receive Soc. Sec.  I wish you the best of luck.

uk2 - Hon I feel for you.  I was wheelchair bound for two years and even now can't go out where it would require me to walk anywhere.  It stinks because it isolates one so much and I pretty much just stay at  home also (I had my injury in 06 too).  Fibro is like MS when comparing the flare-ups.  Some get them much worse than others.  I hope you are in some type of rehab. program and working on your strength and muscles.  I'm praying that you are just having a severe flare and that you will be up and about by the new year.  I'm thinking of you.

twix - I had probs. also with what medication to take.  I brought two seperate pill holders...one for the a.m. and one for p.m.  I sit down each week and put all my medications in the daily slots so that they are already there when I need them.  This has helped me a lot.  It's very important that, even though you feel active, you get good rest at night and learn to pace yourself.  Please keep hope and have faith that you will get better and you'll learn to adjust your day to day tasks so that you don't feel worse the next day.  Take care and stay safe.

[twix]

i am just hanging on. i can't even take care of my family anymore, and i think i am someone really active for someone with fibor. i just can't keep up.

[FemmeFugazi]

I have both. CFS and Fibro. I think I developed Fibro first and then CFS had it's original onset about a month later. I had to nag and badger my doctor to actually get a CFS diagnoses. I printed over 500 pages of information on CFS from different sites on the net (including MedHelp), and armed with that I managed to convince him to run the appropriate tests they run.

And I was finally diagnosed officially on May 14, last year.

I do work full time, and my line of work is very physical sometimes. But, when I'm having a really rough day I'll do less of the physical work and more of the technical work, since I'm good with computers.

I have a degree in computer programming from UCLA... but... in the world of computers a 12 year old degree ain't sayin' much !

[uk2]

Hi

I used to be a carer in the community now i have carers in to look after how ironic!!

I had a bad car accident in 2006 nov and then started getting sick in jan 2007 i worked untill may 2007 when i came down with all over body spsams and what felt like the worst flu in the world!! aand i've not recovered since, i went for all the test and got dx in jan 2008 i used to drive and still go church but and cook and look after my children 3 of them young ones but now i can barly walk and am on serve disabilty, i have to use a wheelchair when out and sticks indoors and some days i dont get out of bed because of the flares are so bad!!

I also have MPS myofascial pain syndrome and degenitive disk disease in C2 L4/5 and S1 narrawing the spinal cloum but not enough to warrant surgery so they say!!

But i cant under why i cant get back to at least how i was when i was driving and didnt
need help or spend dys in bed in agonising pain!!

Why is it that some people with fibro can work and some cant!!  I guess being a disorder of the CNS its like MS it effects people in differnet ways and at different rates.

I am going on a input course soon residential at a hospital to help sort my medication and get me more mobile.

sam

[VaBreeze]

Oh I can so relate to what you mean about rolling out of bed, lol.  I have to get up very early so that I can have time to stretch out a bit and get my fog to lift.  It takes me twice as long do get ready than it use to.  Those rainy days are horrible because it makes me ache worse too.