I HAVE FIBRO AND CFS AND MANY OTHER ISSUES

[suzy5554]

HI, PARDON THE CAPS..I DO NOT SEE TO WELL. I AM NEW TO THIS FORUM. I HAVE LOOKED FOR A PLACE TO SHARE AND LEARN ON LINE FOR A LONG TIME, SO I  AM ANXIOUS TO READ AND LEARN. I GOT DX'ED WITH FIBRO AND CFS ABOUT 10 YEARS AGO..PAIN AND FEELING TIRED IS ARE BIG PARTS THAT I DEAL WITH, AND SLEEP (EITHER TOO MUCH OR NOT ENOUGH). THEY HAVE ME ON LYRICA AND PAIN MEDS BUT SOME DAYS EVEN THAT DOES NOT HELP MUCH. I WILL HOPE TO HEAR FROM SOME OF THE FORUM AND I HOPE TO CK IN SOON...I AM ALSO FACING FEMALE PROBLEMS FOR CANCER. I HAVE A HAD A ULTRA SOUND A FEW DAYS AGO, AND TODAY A CAT SCAN..I WILL NOT FIND OUT C-SCAN RESULTS TILL WEDS. UNFORTUNATELY I HAD VAGUE SYMPTOMS AND IT WAS ALL PLACED ON THE FIBRO/CFS/IRRITABLE BOWEL AND I LIVE WITH PAIN SO THEY DISMISSED THAT..THEN ABNORMAL BLEEDING SOMEONE TOOK NOTICE. I HOPE IT IS NOT TOO LATE IF IT IS CANCER..DO MANY OF YOU FIND THAT IF YOU HAVE OTHER HEALTH ISSUES THAT NOW THAT YOU HAVE BEEN DX'ED WITH FIBRO/CFS THAT THEY SAY THE REASONS FOR YOUR NEW ISSUE IS ONLY PART OF FIBRO? I WILL NO LONGER EXCEPT THAT IF THIS IS NOT CANCER, FOR I MAY HAVE STOPPED IT SOONER IF I HAD PUSHED THE DR. MORE..I DON'T KNOW FOR SURE, BUT TODAY THAT IS MY THOUGHT. WELL, I GUESS I HAVE RAMBLED ENOUGH. I LOOK FORWARD TO HEARING FROM SOME YOU..BLESSINGS..SUZY

[TrudieC]

Suzy, welcome to the forum.  So sorry we have to meet like this!

Yes, I have found that too often doctors do write off symptoms as part of the fibro.  It is scary out there - we have to be our own healthcare advocates.  No longer can we just accept what our doctor says and expect to have the right results.  I hope and pray that you don't have cancer and that your issues can be easily dealt with.  

You don't mention depression meds.  You might want to talk to your doctor about that as they can help.  If you are still having pain then also talk to your doctor about your Lyrica dosage.  It may need to be increased to give you more relief.

Please let us know how your tests go.  This is a safe place to share and vent.

Gentle hugs, Trudie

[vintagechicken]

Welcome and best of luck with your tests! I am new here also and have learned so much about Fibro/CFS, it's amazing how much more encouraged I feel to know that so many other people are struggling and finding ways to improve their quality of life.

I am not taking Lyrica, I have recently started taking Savella and Pristiq. So far I am quite pleased with the improvements I am feeling.

I'm trying to increase my knowledge of vitamins and supplements as ways to counteract the effects of this horrible illness.  I'm going to try and combat some of my symptoms using Olive Leaf Extract and various other herbs and vitamins.  I refuse to accept the sentence of being forced to take prescription meds for the rest of my life!

Please keep us posted with how you are doing!

[WitzEnd1997]

IT'S INCREDIBLE HOW MANY DIFFERENT CONDITIONS DO OCCUR ALONG WITH FIBROMYALGIA.  I CAN SEE HOW A DOCTOR COULD BE LULLED INTO A COMPLACENCY ALLOWING HIM TO WRITE OFF NEW SYMPTOMS.  HOWEVER, DESPITE HOW WE ARE ENCOURAGED NOT TO LISTEN TO OUR GUT OR INTUITION, WE REALLY SHOULD PAY CLOSE ATTENTION TO OUR INSTINCTS, DON'T YOU THINK?  I COULDN'T AGREE MORE THAT ULTIMATELY WE ARE OUR BEST AND BUCK-STOPS-HERE ADVOCATES.  SORRY TO HEAR YOU'RE HAVING TO NAVIGATE THROUGH FIBRO AND POTENTIAL CANCER.  I'VE BEEN PATTED ON THE HEAD BY DOCTORS ONE TOO MANY TIMES.  I WANT MY RIGHTFUL EXPERTISE FROM THE DOC.  GLAD TO MEET YOU ON-LINE AND GLAD TO KNOW YOU'RE QUESTIONING PAST DOCTOR'S METHODOLOGY AND LAZY WAY TO TREAT ON-GOING AND NEW SYMPTOMS.