Aa
I have always been a disbeliever in Fibromyalgia
I am a 29yr old female who was told 10 yrs ago that I had FMS, CFS, RLS, TOS, etc.... I was always athletic and had so much energy, but than it all stopped. I was in pain for years and every doctor dismissed me or told me i had one of the top issues. I ended up with severe depression. I truly think that FMS is just something they call because so many people are sick with no answers of why.
I really do think that the environment has a lot to do with it, hormones and by the way we eat. Eating wholegrains and all natural food is what should be eated. No sugar, no coffee, no dairy, just natural foods. Fresh organic food, if not organic at least eat fresh. No canned foods or take out.
I am sure that many people will disagree but i do believe that we live in a society now of new technology, for example the microwave.. Bad thing to have but useful. We live in an age where we live on the go and there is no time to prepare and eat. Its sad that we have come to that, but i do believe that if everyone ate better and I mean pretty much changing your whoel diet than we would have alot more healthy people.
I was once like that i never ate well and i do believe that food is the healer to diseases.
I really do think that the environment has a lot to do with it, hormones and by the way we eat. Eating wholegrains and all natural food is what should be eated. No sugar, no coffee, no dairy, just natural foods. Fresh organic food, if not organic at least eat fresh. No canned foods or take out.
I am sure that many people will disagree but i do believe that we live in a society now of new technology, for example the microwave.. Bad thing to have but useful. We live in an age where we live on the go and there is no time to prepare and eat. Its sad that we have come to that, but i do believe that if everyone ate better and I mean pretty much changing your whoel diet than we would have alot more healthy people.
I was once like that i never ate well and i do believe that food is the healer to diseases.
Whether you believe in FMS or not is irrelevant. We are all sufferers. And this is a support group. So that's what we should be doing, supporting each other. As for support groups, I stopped going to my local FMS live support group as I was tired of the "I'm sicker than you" attitudes and didn't want to see anyone in wheel chairs or walkers. I've gone the walker route myself and refuse to live that way.
I was diagnosed with growing pains at 8 years of age and I'm 64 now, a lot of years of suffering. And the diagnosis continued long after I stopped growing. Last year I was diagnosed with sleep apnea, and I was thrilled. I assumed, based on the NIH studies of sleep deprivation, that my symptoms were related to my lack of REM cycle in my sleep pattern and using a c-pap machine would help. Well it helped with all of the other apnea symptoms, but not FMS. Now, I'm going to an environmental allergist who is administering high dose Vitamin C and other nutrients. I'm feeling much much better. I'm going to bring the info on the Marshall Protocal to him. I'm already on Benicar for other reasons, so maybe it would be an option.
I was diagnosed with growing pains at 8 years of age and I'm 64 now, a lot of years of suffering. And the diagnosis continued long after I stopped growing. Last year I was diagnosed with sleep apnea, and I was thrilled. I assumed, based on the NIH studies of sleep deprivation, that my symptoms were related to my lack of REM cycle in my sleep pattern and using a c-pap machine would help. Well it helped with all of the other apnea symptoms, but not FMS. Now, I'm going to an environmental allergist who is administering high dose Vitamin C and other nutrients. I'm feeling much much better. I'm going to bring the info on the Marshall Protocal to him. I'm already on Benicar for other reasons, so maybe it would be an option.
Let's just start all over again. I think you can understand why your subject line confused people. Many of the people w/ both CFS & Fibro have already heard physicians', friends or family say, "I don't think it is real". One thing I've learned is that we are all in this together and it is up to us, the patient, to keep up on the latest CFS or FIBRO research and share information with other people who have the same diagnosis. Not to mention, share the information with our physicians.
I also believe our healthcare "system" in the U.S. sucks as well. Physicians' only have 5 minutes to spend with their patients' and health insurance is becoming more and more expensive. Also, if you have a pre-existing condition and you let your health insurance lapse, then you are out of luck. Getting a diagnosis is a double-edged sword. If you have asthma now, your next health insurance provider may turn you down (if you've let your insurance lapse). If you lose your job from being disabled, you have to wait months - if not years, for long term disability benefits, if they approve you. And at the same time you are expected to pay for COBRA insurance, which is approximately $400 a month for one person. How can you do that if you aren't getting any disability checks? This is how people become homeless. = ( And this is precisely why we need to stick together & support each other... there is strength in numbers.
It wasnt you it was hityty she made a comment to me that go me mad. Than it seemed as though you jumped on that train as well. You are misunderstanding still about the title. I am not telling anyone that has FMS that the disease doesnt exsist. I just dont think dr's know and there is more to it than here is what the problem is move on now.... I am not angry in any way. If you read my first post again it wasnt in any anger until i asked hityty if she made that comment at me. I dont feel that i was out of line. True she made me mad and i should have let that go but it was rude. The reason i have the named ticked if anyone needs to know is not because I am angry I am ticked off at our health care system. I live in Canada and the system sucks. I have been on here since November 2005 in the ovarian cancer forum trying to find answers. I am ticked yes!! mad and angry no. I am just stating things that helped me and she took what i said in some other way and i think that is wrong. I also felt that you were sticking up for here so I based my comments to both of you. Sorry if you were offended but as you can plainly see it all seems to be an understanding and I am seriously not going to continue this because it is not what i wanted this thread to be about.
"I think that the two of you are way out of line and need to control the way you speak when people have an opinion other than yours."
_______________________________________________________________
Still "ticked" ? Let's get some things straight here:
1. I don't necessarily disagree with your opinions. I agree that people with immune dysfunction syndrome are more sensitive to chemicals, pollution and stressors (physical and emotional). I also know that an estimated 65% of people are expected to have allergy problems (autoimmune) in the next 10 years. They didn't even mention the number of expected asthma cases.
2. You came here with a nic of "ticked" - stated that you were a "disbeliever in Fibromyalgia", knowing that this is a Fibromyalgia support group! You then stated that you have lost your life pretty much (C9) and then said, "I am just not going sit and feel sorry for myself and the more you do that the more you wont find anything that will help you. you dont help yourself than you will stay as you are". Do you think that people in this forum are feeling sorry for themselves? And if they do, isn't our job to be there to support them? You should know how awful fibromyalgia is. I don't have fibro, but do have CFS and often the symptoms overlap.
And then you tell me that I am out of control?? Which post? I just said that it appeared that you were angry. I still believe this. I just didn't know who you were ticked off at... now I think I know the answer to that. I am relaxed...btw = )
_______________________________________________________________
Still "ticked" ? Let's get some things straight here:
1. I don't necessarily disagree with your opinions. I agree that people with immune dysfunction syndrome are more sensitive to chemicals, pollution and stressors (physical and emotional). I also know that an estimated 65% of people are expected to have allergy problems (autoimmune) in the next 10 years. They didn't even mention the number of expected asthma cases.
2. You came here with a nic of "ticked" - stated that you were a "disbeliever in Fibromyalgia", knowing that this is a Fibromyalgia support group! You then stated that you have lost your life pretty much (C9) and then said, "I am just not going sit and feel sorry for myself and the more you do that the more you wont find anything that will help you. you dont help yourself than you will stay as you are". Do you think that people in this forum are feeling sorry for themselves? And if they do, isn't our job to be there to support them? You should know how awful fibromyalgia is. I don't have fibro, but do have CFS and often the symptoms overlap.
And then you tell me that I am out of control?? Which post? I just said that it appeared that you were angry. I still believe this. I just didn't know who you were ticked off at... now I think I know the answer to that. I am relaxed...btw = )
and as for the "always been a disbeliever in FMS"" my word how else do you want me to put that... hmmmm lets see.
I dont beleive that drs know what the problems is so every patient that has these symptoms gets pegged as FMS
Oh wait a minuite!!!! that sounds exactly what my title
""" wondering what the problem is here""""""""
Seriously people need to grow up here. When i first had this problem i researched everywhere to find a cure. I didnt rule out anything. So if someone wrote this post and i read it, i would do some serious thinking. Its called opinions and everyone is allowed to have one. I didnt say that Marshall protacol is garbage and run off my mouth, i thought about it and will do some research. You both need to remember that other people have this disease and people are different and so are their bodies and if one thing doesnt work for you it could work for someone else, hense why this disease is not understood by many. Why you are arguing with me is pathetic. I am not angry and i think that you both need to relax.
I dont beleive that drs know what the problems is so every patient that has these symptoms gets pegged as FMS
Oh wait a minuite!!!! that sounds exactly what my title
""" wondering what the problem is here""""""""
Seriously people need to grow up here. When i first had this problem i researched everywhere to find a cure. I didnt rule out anything. So if someone wrote this post and i read it, i would do some serious thinking. Its called opinions and everyone is allowed to have one. I didnt say that Marshall protacol is garbage and run off my mouth, i thought about it and will do some research. You both need to remember that other people have this disease and people are different and so are their bodies and if one thing doesnt work for you it could work for someone else, hense why this disease is not understood by many. Why you are arguing with me is pathetic. I am not angry and i think that you both need to relax.
When I first started this conversation I was just stating that i dont believe that the whole FMS exsists because DR's dont even know what is going on with their patients, they are all sick and they cant help them. It is infuriating. I was stating that i believe that the way we live is a rational reason for all of it. you dont see the generation before us with these problems. They didnt grow up with microwaves, as many cars and pollution, tupperware that has chemicals in them when you microwave it etc the list goes on. I am not pretending that I am cured by the way i eat, what i am saying is that it helps and people dont realise how important food is to your body. I think that the two of you are way out of line and need to control the way you speak when people have an opinion other than yours. Depression also plays a factor in this disease as well along with any kind of abuse that happened earlier in life. I think that things have changed for women since womens lib, and that is why a majority of people with this disease are women. They work 8-10hrs a day full time than come home to cook clean and raise a family. To me that doesnt help. I dont appreciate you bombarding me because i state my opinion. You dont like what i say than move on. You twisted up everything that i said and I think that the way that you have talked is immature and you need to grow up. And as for the name ticked, again since you dont know me, it has many meanings doesnt mean angry so before you jump to conclusions you need to stop and think. I dont think that i have said anything wrong and you are getting defensive over nothing.
Have an Answer?
You are reading content posted in the Fibromyalgia Community
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.
PrEP is used by people with high risk to prevent HIV infection.
