I have always been a disbeliever in Fibromyalgia

[ticked]

I am a 29yr old female who was told 10 yrs ago that I had FMS, CFS, RLS, TOS, etc....  I was always athletic and had so much energy, but than it all stopped.  I was in pain for years and every doctor dismissed me or told me i had one of the top issues.  I ended up with severe depression.  I truly think that FMS is just something they call because so many people are sick with no answers of why.

I really do think that the environment has a lot to do with it, hormones and by the way we eat.  Eating wholegrains and all natural food is what should be eated.  No sugar, no coffee, no dairy, just natural foods.  Fresh organic food, if not organic at least eat fresh.  No canned foods or take out.  

I am sure that many people will disagree but i do believe that we live in a society now of new technology, for example the microwave.. Bad thing to have but useful.   We live in an age where we live on the go and there is no time to prepare and eat.  Its sad that we have come to that, but i do believe that if everyone ate better and I mean pretty much changing your whoel diet than we would have alot more healthy people.

I was once like that i never ate well and i do believe that food is the healer to diseases.

[PlateletGal]

I never used to tell people that I had CFS. I worked in the medical field and was afraid of the responses I would get. Although everyone knew I had health issues and even one physician ordered an IGA on me years ago. I'm not that way anymore. I realized the only way to change peoples responses was to educate them. I've been keeping up on the latest research on CFS and there is enough research and also lab tests that can prove you have CFS; same with fibromyalgia. I guess this is why the CDC finally came out and said, "yes, CFS is real".

For the latest CFS/FIBRO related research, google "Co-Cure" and check out their website. Also, there is now a lab that can make the CFS or FIBRO diagnosis ! However, they don't need blood... they need your spinal fluid. (( YIKES ! )) Like you said, fibro falls into the neurology category. CFS does as well... CFS also affects your immune system and endocrine. Fibro also affects your immune system, I think. Oh well... the lab is "Red Labs USA" - google the name and you will find their website.

(((HUGS))) --- we definitely deserve and need them !

[line]

I love when you tell people you have fm and they say "oh that" and roll their eyes, they should walk in our shoes for a week and see what their attitude about fm is than.

I have no idea what is causing this dd but I do know it is real and darn painful.  Every day it is something with these dd.

I have a friend that has fm and cfs and is in a research program sponsered by a major hospital, she just told me they are thinking fm is a neuological disorder. I can buy that with the sharp shooting pains, numbness, tingling etc.

Hugs, Linda

[Hityty]

I just love it when people say things like Fibromyalgia isn't a real sickness, and here I thought I've been in horrible pain for 15 years, oh silly me!

I'm on the Marshall Protocol too, and I recommend it to anyone with a real illness like CFS, FMS, etc, and to those who suffer similar symptoms but struggle to find a diagnosis as many people do!

Plateletgal, I really appreciated your comment about MS patients going through the same thing 30 years ago that we're facing today! People should remember things like that before posting their opinions!

[PlateletGal]

Here is a link to more information about CFS/FIBRO & the Marshall Protocol:

http://www.medhelp.org/forums/Symptoms/messages/1958.html

Trevor Marshall, Ph.D and the Marshall Protocol can also be found on the wikipedia website. Dr. Marshall cured himself of sarcoidosis with his own protocol ! If you go to the website, you will find that a lot of people w/ other diseases share the same symptoms as FMS & CFS --- it all falls under "Th1 inflammatory diseases".

[PlateletGal]

I have CFS and I hate telling people my diagnosis. The reason why is not only the name of this horrible disease, but the fact that researchers aren't sharing their information with the public. I understand the CDC had research funds set aside years ago for CFS and one of the managers decided to use those funds for something else ! Thank goodness, he was fired. Now that some of the research is getting to the public, hopefully the attitude towards people who suffer from this horrible disease will end. The CDC finally admitted that CFS can be as debilitating as MS, AIDS or COPD. Interesting how MS patients' thirty years ago faced the same thing that we are facing now. Physicians' once dismissed them as well. What is also interesting is the fact that CFS sufferers have low uric acid levels... just like MS patients do. Our uric acid levels are only 1 or 2 !!

I agree with you about what you said. Many people now who get tested for pollutants are finding out they have high lead and/or mercury levels. Our diets have also changed over the years and not for the better.

For my illness, I use supplements (actually.. supplements are recommended by Dr. Paul Cheney... CFS physician) and I also started the Marshall Protocol earlier this year. You may want to check out their website. Go to google.com and type in "Marshall Protocol" + "CFS". My Endocrinologist prescribed it for me. He said that two of his CFIDS patients' were 95% better after completing the protocol.