Aa
Is This Fibro Stuff For Real?
I went to a Rheumatologist last March when I finally got fed up with feeling like garbage and my appointments and testing with a neurologist revealed only a mildly positive ANA and three bulging discs in my low spine. I presented the rheumatologist with my symptoms list, which I put below, and she pressed on a few spots on my body (I had NO clue I hurt that bad in so many spots!) and informed me I had fibromyalgia. Honestly, I got mad and left the office, irritated at getting a wastebasket diagnosis for real symptoms. But the more I read, the more I'm starting to believe. Here are my symptoms, the most pressing of which are at the top. Please let me know if you can relate. And yeah, I know, I sound like quite a mess!
Insomnia, particularly in low light months
Dizziness, balance problems
Palpitations
Joint pain or "bone pain" - feels like pain shooting through my bones, and it moves all over my body randomly.
Feeling like my hands are swollen when they're not
Ocular migraine/unexplained blurred vision that usually accompanies severe fatigue and full body pain
Irregular or completely absent periods
Tingling in hands and arms
TMJ
Interstitial cystitis (dx: 2002)
Frequent kidney stones
Restless-legs syndrome
Multiple chemical sensitivities
Esophageal spasm
Anxiety
Raynauds
Carpal tunnel syndrome (this went away after my son was born though...)
Anyone else this wrecked?
Insomnia, particularly in low light months
Dizziness, balance problems
Palpitations
Joint pain or "bone pain" - feels like pain shooting through my bones, and it moves all over my body randomly.
Feeling like my hands are swollen when they're not
Ocular migraine/unexplained blurred vision that usually accompanies severe fatigue and full body pain
Irregular or completely absent periods
Tingling in hands and arms
TMJ
Interstitial cystitis (dx: 2002)
Frequent kidney stones
Restless-legs syndrome
Multiple chemical sensitivities
Esophageal spasm
Anxiety
Raynauds
Carpal tunnel syndrome (this went away after my son was born though...)
Anyone else this wrecked?
Hi, I am new to this site.I am happy I found it. I have had fibro and cfs for about a year and a half. Very frustrating to say the least. I am in health care and sometimes thats even worse when trying to deal with the dr's. They can be offended if you try to push them for help or are informed about your condition, it upsets there ego's. But we must stay positive. I find that daily yoga helps. If i keep my self flexable My joints and body dont freeze up as much. Yes it is very painful, but exersize is important. Also I have tested positive, antibodies for the following, ebv,cytomeglio virus as well as herpes 6. I have done a ton of research and am in a great deal of pain all the time. I have most all of the symptoms. The most frustating now are poor sleep and the darn choking. I had accupuncture for a while,it helped a great deal, but ins. co. wont pay anymore. I am on pain meds ,tramadol, but it makes me very nauseous, so I dont take it as much. Also just filed intermintant fmla for work. Thank god, now I have extra days off when needed. My family are tired of my chronic condition so now i can come here to talk and share. Thankyou everyone.
When tested for Lyme Disease most physicians only do the standardized testing and MANY times it will come up negative. There are more extensive tests with 3 labs around the country. Unfortunately most insurance companies won't pay for the extensive testing. If you feel you have Lyme Disease, DEMAND the specialized tests.
There was a special about a young girl(16 years old). She was tested for Lyme's only to be told she didn't have it. She was a very active student, loved school, cheerleading, school activities. She had to quit school because she was so ill. The doctor's thought she was too stressed, put her on anti depressent meds, told her to take a vacation. It was while on vacation she met a girl who said her sister had the same symptoms and gave her the name of her sister's doctor.
Her parent's flew her across the country to meet with the doctor and sure enough, she had Lyme's Disease.
There was a special about a young girl(16 years old). She was tested for Lyme's only to be told she didn't have it. She was a very active student, loved school, cheerleading, school activities. She had to quit school because she was so ill. The doctor's thought she was too stressed, put her on anti depressent meds, told her to take a vacation. It was while on vacation she met a girl who said her sister had the same symptoms and gave her the name of her sister's doctor.
Her parent's flew her across the country to meet with the doctor and sure enough, she had Lyme's Disease.
I am new to this forum. I was diagnosed with Fibro after I kept having bad reactions to medicines that were used to treat pain on my right side of my body due to a rare reaction to ciprofloxin (kidney infection and removal of kidney stones in ureter -6. Also still have stones lodged in both kidneys). I was on cipro for 40 days. I also have DDD, Degenerating Disc Disease in between my C5/C6 cervical vertabrae (Neck). I went two years in horrible pain due to a very bad doctor. I had to ask for referrals to orthopedics and rhuematology because she believed it was "all in my head" She thought I was drug seeking, and also thought it was part of my Bipolar. I have been bipolar all my life and didn't seek medical help for pain until 2004. When she wrote the referrals she wrote on the referral that I gave her a "convuluted story" and she believed she was treating me appropriately for muscle spasms. See all my test came back negative from the radiologist...BUT the ortho doc ssaw immediatelt that I had DDD. I don't know why the radiologist missed it on the MRI and the general doc. she missed it too! So specialist are definately the way to go. The rhuematologist immediately did a tender point test for fibro and I had 11 points. I am not fat but I did gain 10 pounds from the meds. I have been taking percocet when I need to function at work, and I am on Tramadol, Elavil, and Robaxin. I think I am going to stop the Elavil. I also had trigger point injection for spastisity in my back and shoulders and it made that a lot worse (Chronic Myofacial Pain). The injections for my cervical disc did not help and now this doc wants me to wait for four months before he does anything else and I just don't understand that at all...he's a pain management doc. I am thinking of trying to get a referral to nuerology...What do you all think?
Hey anacyde, You might want to check out Igenex for lyme and Enterolab for a gluten intolerance test. My symptons are almost identical to yours but I also have keratitis and abdomonel pain and bloating. I had had the regular lyme disease and celiac tests but they were negative but through Igenex and Enterolab they were positive. For the last few months I've been on a gluten free diet and immune boosting foods/supplements for the lyme and have made huge strides.
Good luck!
Good luck!
What you are describing sounds like nystagmus to me. You could google it for more info and see if it fits. I'm not sure if that is a fibro symptom though. I know it's a neuro symptom.
Yes, men get fibro. It's just much less common in men. The doctor who diagnosed me is a man and has fibro himself. He's nationally known. Google Mark Pellegrino, M.D. and see if you can find more info. He has written several books about it. The book I have is called Fibromyalgia, Up Close and Personal.
Ladies..Ladies....Take a breath.Let's all just get along with each other.This is my first post and I have all the same problems as yall(set aside the menstrual because I am male) but would like to know if any of you also shake a little and when your eyes are closed feel like your eyes are shaking(not sure what the real term is).I've had the same problems for about two years and it's getting worse.I have a 2 year old and newborn that I am concerned about providing for.Thanks for your help.
I am not. I was simply trying to get this person to see reality. Obviously it didn't work and I am ignoring her now. I also reported her to MedHelp.
You are as gulity of abuse as she is for responding to the posts. Why are you doing this??????It's ridiculous!!!!
I am not a cow, as I already told you. Actually, I laugh at you because I'm thin and you haven't a clue as to what you are talking about. Only stupid people would make such assumptions. Since you aren't banned, I will go ahead and inform MedHelp that you are once again causing trouble.
I don't have fibro, you idiot. Did you read anything I wrote?
Goodbye Patricia.... you are a bore !
Goodbye Patricia.... you are a bore !
Sounds good to me. This person obviously wasn't interested in debating the issue. She came here and attacked because she has some real issues.
Time to move on.
Yes, that's all she wants. Let's forget about her and go back to helping and encouraging each other.
TRL
TRL
Myths and Misconceptions about Fibromyalgia:
http://www.nationalpainfoundation.org/MyTreatment/articles/Fibromyalgia_Myths.asp
I guess you failed to read MedHelp's "Terms of Use" when you joined this community.
"your not that stupid are you?"
CORRECTION: You'RE
I thought you were making rounds, Patricia. Oh and btw, you still haven't figured out that I haven't posted any questions, etc. about my health. I do mention my health on occasion, so other people know that I also have health issues and this is why I'm here. I have the opportunity to help others... unlike yourself.
Hasta La Pasta. You can certainly post your phone # if you would like. It is against the rules, but from what I can see... you don't care about the rules here. Go ahead and break them again.
CORRECTION: You'RE
I thought you were making rounds, Patricia. Oh and btw, you still haven't figured out that I haven't posted any questions, etc. about my health. I do mention my health on occasion, so other people know that I also have health issues and this is why I'm here. I have the opportunity to help others... unlike yourself.
Hasta La Pasta. You can certainly post your phone # if you would like. It is against the rules, but from what I can see... you don't care about the rules here. Go ahead and break them again.
I don't care if you are an MD, CEO or President of the U.S,. You obviously have issues coming into a community where there are real people with real health problems and for some reason, you feel like you have to be judgmental and make asinine statements.
And please, don't try to intimidate me by calling me "darling".
As far as fibro being overdiagnosed, it may be. But the real problem is that there are people with real health issues and physicians' are responsible for their healthcare. If physicians are misdiagnosing these patients', take your issues up with them. I know many patients' here are frustrated with the healthcare they have received, including myself.
And yes, some patients' have depression and anxiety issues that may cause some of their symptoms. Physicians' are also responsibile for ruling out those conditions before any other diagnosis. But fibromyalgia is a real illness and I know that there is a blood test that can diagnose both fibromyalgia & CFS... check out "RED LABS USA".
I was thinking the same thing when I read your post. = )
And I seriously doubt you are a physician. If you are, God help us all.
Not that it is any of your business, but I'm doing a virus check on my computer right now. You have no clue who I am or what I do, so what I stated earlier is true.
You are not a compassionate person and I seriously doubt that you are a physician. I could ask you medical questions, but you would probably use google to get your answers.
Goodbye.
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