It's becoming unbearable

[Emperorgrahf]

When I was about 13 or 14, I was put on a combination of prozac and dexadrine (ritalin substitute) and I had a bad reaction that ended up putting me in the hospital with extremely high blood pressure, IBS like symptoms and widespread pain. I'm 26 now and I've still had the pain and IBS the whole time since, and the pain gets slightly worse over time and has gotten almost debilitating. I've been going to various doctors over the years who always go through the same routine of taking nearly a quart of blood out of me over the course of several months, telling me that they don't see anything in the bloodwork, and occasionally prescribing medicine that at best works for a few weeks to a month before things return to "normal" and the pain returns a little worse than it was before I started. I don't know what to do because I have all of the symptoms of fibromyalgia, but nobody will give me a straight diagnosis.  My current doctor is humoring me and giving me lyrica to see if it helps, but it has mostly just made me irritable and in a "fog"

has anyone else had similar horror stories that they want to share.  also, has anyone else had any skin conditions that started near the same time as their fibromyalgia

[Emperorgrahf]

all of the results came back from the previously mentioned tests, everything was normal on them, my cholesterol was just a little high. other than that normal, just like usual. what else should I ask him to check on? I'll print it out and ask when I go back in two weeks

[Emperorgrahf]

my pre insurance cost on all of my tests has been averaging $800 or so over the past 6 months. I'm pretty sure I've had every test, this one was Rhuematoid arthritis factor, "sedementation rate-westergren", "c-reactive protein, quant" and "ANA+C4+AMA+APCA+ASMA+ThyAbs..."  well, I don't know what else is on that one because that's what it has listed on the bill that I got in the mail today, I'm calling tomorrow to find out what the results were,  I'm sure that if there is a test, they've ran it.  The last dermatologist I went to is supposed to be the best in east Tennessee, she did a lot of blood work and took a biopsy and said that I have "palmo-plantar pustular psoriasis" which is a bit of a mouthful, she put me on immunosuppressants for a few months, I got almost no results and it was kind of crippling being affraid to go to the grocery store because it's flu season. I would almost stand by her diagnosis that it's pustular psoriasis because it starts with little pus filled bumps followed by the skin flaking off. I show up normal on auto-immune factors. I've been tested and scoped twice with my IBS situation, it just seems like when i get stressed, drink too much, or consume too much dairy (the more processed or cooked the less it bothers me) that I have a flair up, nothing bad, just a few hours of cramping and diarrhea uaually.  

I had signs of autoimmune problems when I was about 14, when I first started having issues, I had protein in my urine, they did a lot of tests including me having to give a urine sample in the morning before I got up out of bed (trust me, no easy task to urinate in a cup laying down) They suspected lupus for a while, but my autoimmune factors went away and so did the protein in my urine.

I looked up gutate psoriasis and it doesn't really seem like what I have going on, mine is just the palms of my hands and bottoms of my feet, I'll see if I can't get some pics on on photobucket or something soon.  I get tiny little pus filled bumps, pustules they are called, then it forms into little pools under the thick layer of dead dry skin.  

my diet is mostly soda and coffee and meat.  I've been making an effort to get more fiber and veggies in there. and I've cut back on meat, it's harder to motivate myself to cook meat since my wife doesn't eat it. I'm not hypertensive, so I don't know what other questions I could answer, if I remember, I will post my test results tomorrow, but I'm almost sure that everything will say I'm perfectly healthy and it's all in my head and I'm a nut-job

[wmcfromtemple]

I am in a similar boat. In fact I just posted the "just fibro" question. I can sympathize with you completely. Having your doctor tell you that he "doesn't have the faintesst idea" of whaat to do with you isn't any help. I tried Lyrica and gained 20 pounds, was in a total fog all day, had to take off work for a week to recover- I've been on almost every drug there is for pain, nerve pain, muscle pain, muscle relaxers, antidepressants etc. I quit them all because of side effects. The only thing that helped me was accupressure I got form a wonderful Chinese physician in my home town of Fargo, ND. I have found nothing here in Texas to help. I'm sorry I can't help you- but I can be there with you in spirit. Maybe there's a doctor out there somewhere, who someone will know of, who will actually know more than "there's no treatment for fibromyalgia" and will know how exhausting constant pain can be.

[LPCCSM]

I am starting to strongly believe that Fibro is an immune disease. Did you have strep or mono before your rash? Have you ever heard of Guttate Psoriasis? Did they ever tell you what your rash was? Have you had other weird things like involuntary movements (leg spasms), kidney stones, hypertension? These are related to uric acid; is your diet poor, high in fructose and animal products. Do you have digestion issues, possible issues with nucleotides? Look into microbial virulence or microbial antigen of the nephritogenic and arthritogenic. Ask for an ESR test. There is much more that needs to be ruled out and do not take no for an answer from your doctor, be proactive this is your life and pain free is a better way to go.

[Emperorgrahf]

I believe I've been tested for Lyme, I've also been tested for parvovirus, celiac disease, I don't have any autoimmune markers, they also tested for blood borne signs of inflammation, I've been checked for any spinal injuries, I don't have IBD or crohns.  I'm at a loss for any other possibilities.  The skin condition is psoriasis, just on the palms of my hands and bottoms of my feet

[patsy10]

Have you  been tested for lyme disease?  You mentioned a rash.  Many people who are diagnosed with FMS really had lyme all along.  The doctors probably can't give you a straight answer because there is no answer.  They can't find anything.  Remember, even if you get a diagnosis of FMS you still don't really have a diagnosis because fibro is just a group of symptoms with an unknown cause .  It is not a disease.  I have been battling something for 3 years now and have no real diagnosis.

[dottypotty]

Iam on lyrica itis supposed to be the best drug for fibro For ibs spasmol aps ad pepermint crdialin worm water. Excuse spelling my fingers are huting not a good day from Dorohy