Trudie C - Thank you for your post, what does Lyrica do to help symptoms?
Family2011 - Thank you for your support and I will let you know if i find out whats causing my symptoms when i do find out.
Hi. I have fibromyalgia and all of your symptoms. The doctors say it is not related. I am going to another neurologist for a second opinion. I have muscle weakness, spasms, and involuntary movements as well. Good luck to you. If I ever get a dx I will let you know. I ask you return the favor though.:)
I definitely get the itching and crawling with my fibro. I found a big improvement with Lyrica. Gabapentin is a similar drug to Lyrica and is much cheaper. You might want to give it a try. Or, get your doctors working together to adjust your bipolar drugs. Cymbalta (an SSRI anti-depressant) is useful in both bipolar and fibro.
Thank you everyone who answered :) very much appreciated.
Hey everyone!
Your symptoms and dxs are real challenges,not only for you, but for your health care professionals. Unfortunately , the prescribed medications, at best manage the symptoms, in the short to medium term. In the long run,as your JNK gene continues to stay activated
by the medications you are on and other factors, your health continues to progressively
deteriorate further. Symptoms worsen, new ones appear and other diseases may start showing up. Should your condition be caused by pathogenic mycoplasmas, then I urge you to research this area very well. Mycoplasmas can take over your immune system!
Some of my previous posts here cover the basics, regarding autoimmune and neurosystemic diseases and the connection with pathogenic mycoplasmas.
Extremely few Doctors are familiar with proper diagnosing and treatment of such diseases.
Knowledge is power. And the best prospects for healing themselves- afterall NOBODY
can do it for you! - are the ones that are more knowledgeable , open and proactive!
So please, do yourself a favor. Do not stay in limboland and continue suffering
unnecessarily all your life. There are things you can do!
Post again with your comments and questions.
Blessings to all!
Nikodicreta
To suppmomma531
Thanks for your reply. I don't believe it would be an allergic reaction as i have been on my meds for some time and have had no resent changes but i will look into it
To cewilcox
Yes i agree that once with this diagnosis the doctor give up on finding a treatment/ other reasons for symptoms and i wonder if that why my doctor is hesitant to properly diagnose or not, but something has to be causing these problems and my worry is that it will only get worse if not treated or recognized and i do not have the money to get an mri or ct. but thank you for your reply
To tooyoungforfibro
No welts just red skin from itching so much. What else could be ruled out or could it possibly be? any ideas would be good. I also have very sensitive muscles say if you touch or slightly push into the skin especially on my legs the muscle really hurts even though it was not pushed hard do you get that?. Thank you for your reply.
Yes, I get all of these symptoms with fibromyalgia but that does not mean that it is fibromyalgia. It is very important to rule out any and all other possibilities before calling it fibro even though it does sound that way. Do you get welts with the itching?
Get an MRI of head,neck and spine. I was DX with feibro at 13 the last november I had an mri because of a wreck and was DX with a chiari malformation that explained my symptoms. My doctor says I may still have feibro. But to me doctors tell you you have it cause they don't want to continue searching for more reasons. I tell everone to get CTs and MRIs.
Yes, all of these issues can stem from fibromyalgia, but I was also thinking for the constant itching, if this could be from a reaction from some of your meds. Maybe there are a couple of meds that you're taking that are reacting to one another. I would ask your pharmacist or doctor first. Or this could be an allergic reaction to one of the medications. Check out these avenues first and see what comes of it.