Uninformed people!

[lvfrogs]

Is there anyone else out here that is just plain tired (literally) of everyone around you not understanding how you feel? That to get out of bed each day is a miracle, much less keep up with cooking, cleaning, errands, etc. Not to mention anyone with a job dealing with CFS! I just wish someone would tell me once in a while, you are doing great, so proud of you for not letting Fibro and CFS get you completely down!! I could stay in bed all day....
just needing to vent and I know on here, you will understand!!

Working on getting better and finding better ways to help me, just having a down day!

[FurballsMom]

Yes, I get tired of hearing people who are uninformed give me advice.  It's like they think they know what will solve the problem when they haven't got the first clue.

[Arsia]

It really makes me mad 'cause I'm 17, so doctors take me even less seriously. They don't listen to me, and mostly disregard everything I say because I'm a kid and can't know what I'm talking about. And they think I'm being dramatic and exaggerating my pain, when I'm not!

[Totie]

Nope, not me, I don't need understanding, or affirmation that I am doing a great job from anyone BUT MYSELF....as long as I know I am doing the best I can, I don't need anyone's opinion on me. I don't have to justify why I can't do things when I am just not up to it or physically can't, nor do I need to explain my medical issues with anyone I don't want explain them too.

I know I am doing the best I can, so that is all that matters to me....

[laurandavid]

YES!!! I know EXACTLY what u mean!!! It's so horrible! I haven't been diagnosed with CFS, But I have looked into it, and am pretty positive that I have it! However, they quit the research on it, due to funding...so therefore, they diagnose you with something else, like LUPUS, or GLUMERULOSCLEROSIS, ( which is b/c I have a kidney disease also ). But those diagnosis's don't cover the fatigue, dizzy spells, flu like symptoms, tiredness, weakness, etc.