Uninformed people!

[lvfrogs]

Is there anyone else out here that is just plain tired (literally) of everyone around you not understanding how you feel? That to get out of bed each day is a miracle, much less keep up with cooking, cleaning, errands, etc. Not to mention anyone with a job dealing with CFS! I just wish someone would tell me once in a while, you are doing great, so proud of you for not letting Fibro and CFS get you completely down!! I could stay in bed all day....
just needing to vent and I know on here, you will understand!!

Working on getting better and finding better ways to help me, just having a down day!

[SassySharon]

YOU ARE DOING A GREAT JOB!!!!  I know how difficult it is!! And yes having a full time job is ridiculous with all this pain! But even though I have never met you, I am proud of you!!!

Just Sayin'.....................-sass-

[lvfrogs]

Mrsjt50, I think too that our men are fixers and when faced with something they can't fix, like Fibro, they want to ignore it. Hang in there with him, hopefully, you will have some better days and can get back into the dancing, even if only for a bit at a time. You seem to be doing the right things, with getting exercise.  I try to walk and the line dance. and I spend a day recovering but it is worth it!

Trudie,
I would love to talk to you. I will be in and out with doctor appts this week but more in than out, lol. So call when it works for you and we can vent to each other!! Sounds like you need it too. Yes, you do forget when it's a good day, don't you?

Thanks everyone, just reading the posts make me feel better!

[TrudieC]

Colleen, so sorry you were having a down day.  Promise I will call you in the next couple of days and let you vent to your heart's content.

laurandavid, fibromyalgia is often a disease that is diagnosed after all others have been ruled out and can often go hand in hand with other chronic pain issues like Lupus, RA, Osteoarthritis, etc.  Find another rheumatologist who will get you a definitive diagnosis on everything.  If you do have lupus the symptoms are very similar and you do get flu like symptoms, fatigue, muscle pain, etc. too but it can affect other body areas.  It must be treated.  While fibro hurts like h$ll it doesn't affect our other organs so many doctors disregard it.

I was so fortunate to go for about a month feeling good but am being hit bad right now.  It is amazing how I forget what a flare feels like when I am having a good day.  I luckily don't have CFS and really feel for those that have even more fatigue than what goes with fibro.  Hope everyone is having a better day today.

[mrsjt50]

Well, I had the great idea also, and printed of a two page artical about Fm. he looked at it, for about 2 min.. didnt even turn the second page and just put it down. I sat back and watched.. to see what he had to say about anything. I asked him about something in the second page, knowing full well he didnt even bother to read it.. He said, I didnt see anything about that..Boy was I upset.. I keep things inside.. so I calmly said, did you even bother to read the whole thing.. that was on the second page. so, he took another moment to skim over it, then said yes.. I read it. Its not like he does not care, I know he does.. but, I think it hurts him, to know what is hurting me.. ignorance in this case is his best friend :-) I tried to line dance.. I cant get it. lol. We like to dance to jazz. Kind of like swing dancing. Hubby is very good on his feet!! All the ladies want to take turns dancing with him.. I just ordered a total gym, and getting a treadmill. I have a gym membership, but most of the time, i cant get away from the bathroom long enough to get out the door. Once I am there, I spend most my time working if I can make it back around the track, to the rest room!!! I have learned my limits.. the hard way.
take care..

[lvfrogs]

I too have CFS and it's bad. I could literally stay in bed every day, all day. But I get up and do stuff so then of course, instead of people thinking, wow, look how good she does with her Fibro, CFS, heart problems, peripheral neuropathy....no, they think I am up, so I must be ok. It's a hard line to deal with....I am sorry your husband does not understand and I hope that gets better. Print him out articles from the internet if you can. That helped my husband alot. Does he totally understand, no. But he has an idea and communication is the best for you two. He needs to understand how you feel.  
I love to line dance and we did it all the time. I recently had knee surgery so not dancing at all, but plan to try and do a bit at a time soon. A little bit of exercise helps but don't overdo it. If you do, just plan on the next day to do nothing but rest up!!
Take care!

[mrsjt50]

I have a few friends that have fibro.. but, no where near as bad as I have it. They think I am out of my mind. They say.. Oh, I have Fibro too.. and can go about the day as normal as anyone else. I wonder, do they really, or is there levels?! I have CFS so bad, my husband does not want to here anything.. what he does not here, he does not have to deal with, and is not real. So, I just do what I can and don't worry anymore about him.. I had always kept my pain to myself. I dont care anymore.. let him know how I feel.. It all comes down too our selves. We need to worry about us.. know one knows what we go through except someone that is in our shoes. Staying in touch with others that suffer CFS, fibro pain ect is about the best we can do. We understand each other. Let us draw streagth from that. I am 50. I used to love to dance, and I mean dance.. I miss it so much.