just diagnosed

[Chreey]

Hi im a 29 yr old mother of 4. I just got diagnosed with fibromyalgia today. Im not sure on the diagnosis yet the symptoms seem to fit. I have bad spasms where i can see the nerves under my skin pop. And my legs and arms will jerk. I also have pain in my legs and sometimes it burns and my legs want to colapse from under me or my feet will hurt and feel like pins and needles. I also get migrains and dizzy spells and sometimes have memory problems or almost like black out. i will be involved in a conversation but then miss bits and pieces of it. I also have a hard time with my lower and middle of my back hurting. And it sometimes hurt to be touched in certain places like to be hugged or when my husband plays and tries to pick me up. The only reason that im kinda questioning the diagnosis is cause what ive read states that it is having a low threshold for pain. And i have been through some painful things and always thought that i had a pretty high tolerance to pain. But the neuro gave me savella to try and im not sure if i want to since im a nursing mom and its not recomended for nursing moms. Anyone know of a medication used to treat this condition that is? He also gave me a pamplet for an attorney to sign up for social security. Anyone here win social security with only a fibromyalgia diagnosis? Thanks for help. chreey

[Family2011]

Hey you all. Mel Mel I will pray for you and if you two don't care I would like to put you on our church's prayer list. I will just use Mel and Chreey if ok. The rheumatologist was a waste of time for me also. He gave me the dx of fibro and then sent me to a fibro specialist. How long have you all been sick? Did it come on all at once, or was it slowly progressive? My legs pretty much started over night with a few encounters prior too, but nothing major. The rest of it was slowly progressive. I am just curious.

[melmel67]

Yes Stress is a huge factor and lately since my move and homeschooling my boys and living in an expensive state and not being able to work has added more stress on my body! I thought by god telling me what I had it was going to be easy peasy but of course not! I just ask god for strength because I have a lot on my plate. And we the also rescued a dog from our hometown a couple of weaks before we moved and the dog looked like it was dying and it had mange. And yes, some doctors are all about the money that's why they became doctors. A very few actually care about the patient. My experience with the rheumatologist was the worst I ever had and I hope it goes better for you. He treated like if I was not a person just a case that needed to be put apart and investigated for what he thought was wrong with me. I said nothing and he asked what insurance I had and started running blood work and xrays and the worst was he grabbed me hard at my joint areas and asked if it hurt well ya it hurts if you grab someone super hard! So never again am I going to see that nut! Well it's a brand new day and hope you have a good one!

[Chreey]

hey all sounds like you got a full plate melmel. I think stress is a big part of my problem as well. I called the neuro today because i started that savella monday and doc told me he wanted me back in a week im guessing to titrate my meds up since he only started me on 25 mg daily. And the receptionist didn't make my apt until oct 17 so i called to see if i should increase it myself and she got me in on oct 6th. Family these docs don't care they are all about the money. Im starting to really feel this way about my doc. After i get my first denial from ssi im going to make an apt to get a second oppinion from a rheumatologist and check into the lyme testing also. Just got to find out if i need a refferel from neuro or from primary doc or what.

[melmel67]

LOL! MD stands for medical dummy that is what I needed to hear today to start my day with a smile. Thanks! My husband wants me to file for ssi also but I will not do it because I have the hope of one day being able to drive again and especially work. I am tired of being isolated and not being able to work and I can't wait to get out there and show the world what I am capable of doing. I am under a humongous amount of stress right now with the move, trying to keep my family together, homeschooling now and on top of that trying to keep a house in order. I hope you guys start feeling better soon!

[Family2011]

You are not stupid, it is part of fibromyalgia. Not to mention you have four kids. I probably couldn't tell you my name. I hope you get it. My husband wants me to file, but I like working. It is hard, but I like to socialize and be a part of something. I am praying about it. I have been told I have essential tremor by three docs but no one said it could be the cause of my spasticy, but from my research it can cause it. I guess that is why the medication is helping. I wish these brainiacs would have mentioned that to me before I drove 3 hours to go to the doctor and before I ran thousands of dollars in tests. MD stands for medical dummy... Take care and keep in touch.

[Chreey]

Hello all just got back from my ssi mental exam and i would say it was a big FAIL i never felt so stupid in my life. My memory is far more worse than i though. I couldn't count backwards by 7's i got lost and i couldn't even remember 3-4 digit numbers. And one question was what is the difference between a cat and a monkey i said one is a feline and one is a ape couldn't remember the word primate. Couldn't remember capital of italy or what continent it was on i have to point in the air as if i was looking on a map. But one good thing i got the date right LOL! So if this goes anything like my sons did i will have my first decision by the end of next week.