just diagnosed

[Chreey]

Hi im a 29 yr old mother of 4. I just got diagnosed with fibromyalgia today. Im not sure on the diagnosis yet the symptoms seem to fit. I have bad spasms where i can see the nerves under my skin pop. And my legs and arms will jerk. I also have pain in my legs and sometimes it burns and my legs want to colapse from under me or my feet will hurt and feel like pins and needles. I also get migrains and dizzy spells and sometimes have memory problems or almost like black out. i will be involved in a conversation but then miss bits and pieces of it. I also have a hard time with my lower and middle of my back hurting. And it sometimes hurt to be touched in certain places like to be hugged or when my husband plays and tries to pick me up. The only reason that im kinda questioning the diagnosis is cause what ive read states that it is having a low threshold for pain. And i have been through some painful things and always thought that i had a pretty high tolerance to pain. But the neuro gave me savella to try and im not sure if i want to since im a nursing mom and its not recomended for nursing moms. Anyone know of a medication used to treat this condition that is? He also gave me a pamplet for an attorney to sign up for social security. Anyone here win social security with only a fibromyalgia diagnosis? Thanks for help. chreey

[TheLightSeeker]

Hey melmel,
I'm glad you on the right track.
Ewford's advice was spot on! Good for you.
I suggest at this point to look into Dr. Garth Nicolson's work (research and treatment), as he is one of the top experts in this field.
http://www.immed.org/treatment%20considerations/LymeTickTwnsndLet2007.285.93.98.pd

Lyme and Pathogenic Mycoplasma Infections require a very specific treatment protocol to be effective.
It is imperative at this point to do everything possible to strengthen your immune system.
There is no amount of doxycycline or other antibiotics
that can can kill the infection as they are bacteriostatic and not bactreriocidal agents.
Once the pathogen's growth and activity is inhibited by the
antibiotics, only your immune system- in due time- will  be able to identify and destroy the pathogens, provided that it is strong enough to do so.

One more thing to note: Any elevated levels of yeast or fungal metabolites( extremely common in cases like yours) in your body, have to be dealt with asap. A comprehensive antifungal diet along with a prebiotic and probiotic regiment of the highest quality possible, would be in order.
Supplementing also with extra virgin coconut oil -as it has great antifungal properties - will ensure positive results.
This will take a  big load off your immune system, as the treatment with antibiotics  destroys part of the healthy flora (80% of the immune system is in the gut).
This will  give you a better chance for a successful treatment.
If you need more info, let me know.
Blessings,
Nikodicreta

[melmel67]

Hello. I don't know exactly what the treatment is but as far as I know it is antibiotics and it is harder the longer you have it. But it's not impossible either. I will be moving in a week or so with my husband who is back from deployment so this was gods perfect timing. This is barely my first step because after so long of no doctor knowing what was causing my symptoms I finally have an answer and hope. There is a LLMD there where we are moving and I will get all the answers to my questions. I will definatley keep you all posted and updated and hope you and family2011 the best of health and that you feel better soon! God bless.

[Chreey]

Im glad you followed through with the test and got your anwser. So is the treatment antibiotics? I read that it can be cured at early stages but the longer you have it the harder it is. So are they saying now that you just have lyme disease or do you in fact have both fibromyalgia and lyme?

[melmel67]

Ewford,
My lymes test came back and I am writing to tell you "thank you" from the bottom of my heart. I tested positive by Igenex standards. I am so happy because I finally know that I am not crazy and I knew something was causing these symptoms. I can't thank you enough and i know the lord put you in my path to help me and others. God bless you and may you continue to help others by informing about this disease.
For everyone else on this site Family 2011 & Chreey please get tested for lymes disease!!!! I know how it feels to be looking for answers for so many years and your health is not getting better and everyone around you including your family members look at you like your crazy because all your lab works and scans and mris come back normal. May god bless you all!

[Chreey]

My mother takes neurotin and that is some strong stuff. I may talk to the dr about it once im get dd completely weaned. He wanted me to try the savella but i've heard some really bad things about it. But everyone is different hopefully it will help me and i won't have all the side effects. I have heard of taking the vitamins magnesium i believe is supposed to be for spasms and the b vitamins are for your nerves overall. But don't those only help if your body is defficient in them to start with?

[Family2011]

Hey Chreey I am so sorry to hear about your problems. We all have the same symptoms and I am taking some things now that have helped. I was considering disability until this treatment became an option. I will copy my message that I sent to MelMel.
The neurontin is acually a seizure medication that is prescribed for Fibromyalgia. It helps with pain, stiffness, and spacity. I am able to run and walk without a walker. I take the lowest dose possible. The vitamins are bought through www.birkgrove.com. I go to these people, but I am sure you can buy them over the internet. They are made especially for Fibromyalgia. I take the FM/CFS support pack which consists of 8 vitamins. One of them is fish oil, magnesium, vitamin D, 3 B complex vitamins, cortex fatigue, and Folic acid. I skipped a dose of the vitamins and neurontin one day and felt like I did before I started this treatment plan. Once they got back in my system I felt like me again. The vitamins are fairly inexpensive. They cost $72.00 per 60 packs. They are wonderful.
I wish you the best. Fibromyalgia has so many associated disorders and symptoms it is crazy. I was diagnosed with dysautonomia as well. You may want to look into that also. Take care.