just diagnosed

[Chreey]

Hi im a 29 yr old mother of 4. I just got diagnosed with fibromyalgia today. Im not sure on the diagnosis yet the symptoms seem to fit. I have bad spasms where i can see the nerves under my skin pop. And my legs and arms will jerk. I also have pain in my legs and sometimes it burns and my legs want to colapse from under me or my feet will hurt and feel like pins and needles. I also get migrains and dizzy spells and sometimes have memory problems or almost like black out. i will be involved in a conversation but then miss bits and pieces of it. I also have a hard time with my lower and middle of my back hurting. And it sometimes hurt to be touched in certain places like to be hugged or when my husband plays and tries to pick me up. The only reason that im kinda questioning the diagnosis is cause what ive read states that it is having a low threshold for pain. And i have been through some painful things and always thought that i had a pretty high tolerance to pain. But the neuro gave me savella to try and im not sure if i want to since im a nursing mom and its not recomended for nursing moms. Anyone know of a medication used to treat this condition that is? He also gave me a pamplet for an attorney to sign up for social security. Anyone here win social security with only a fibromyalgia diagnosis? Thanks for help. chreey

[Chreey]

Hey everyone! Sorry its been so long since i have been on. Been so tired lately and so much going on. My daughter ended up in the hospital diagnosed with type 1 diabetes. My husband decided to fall 16 foot off the building they were working on. So its been a mess. Update on me. Well I have went in twice for injections in my back. First time ended up feeling worse. The second time felt a bit better for first week but my legs hurt worse. Still having major back problems and hip problems. My hips feel like there coming out of place when i walk sometimes. Legs just hurt and burn. Still have the spasms. And my eyes act up occasionally will look at a number and think it says one thing and say to myself that isn't right and look again and its a different number. I swear im going nuts. Still having migrains on top of a severe cold i have now. Still tired all the time and majorly moody. And the fibrofog omg its the worst! I cant remember anything will get up and go in a room and forget before i even get there why i even got up. can't remember two digits numbers on certain days. And my hearing seems to be affected. I have weaned my daughter down to nursing only at bedtime so getting closer with that. I have everything filed for ssi and may have to soon go in for a mental exam. Really thinking of getting a lyme test done now. Because i swear this is more to whats going on then fibro if its fibro at all. Its just intuition that i keep getting. My half brother has MS and him and i have the same symptoms so maybe both of us should get tested for lyme. Also considering seeing a rematologist how ever ya spell that lol because my neuro does seem to be in it for money and a second oppinion wouldn't hurt anyway.

[Family2011]

The neurontin is acually a seizure medication that is prescribed for Fibromyalgia. It helps with pain, stiffness, and spacity. I am able to run and walk without a walker. I take the lowest dose possible. The vitamins are bought through www.birkgrove.com. I go to these people, but I am sure you can buy them over the internet. They are made especially for Fibromyalgia. I take the FM/CFS support pack which consists of 8 vitamins. One of them is fish oil, magnesium, vitamin D, 3 B complex vitamins, cortex fatigue, and Folic acid. I skipped a dose of the vitamins and neurontin one day and felt like I did before I started this treatment plan. Once they got back in my system I felt like me again. The vitamins are fairly inexpensive. They cost $72.00 per 60 packs. They are wonderful.

[cher11]

I hightly recommend taking as little pills as necessary. Especially try to stay away from the anti-depressants. I have had fibro. since 1993. I did not know how they effected me so much until I had to go with out them this year. I suggest for pain try the more natural and holistic route. Go to chiropractor, get massages, go to accupuncturist. Use ice packs and hot baths to soothe pain. Get a routine. Go to bed and get up at the same time each morning and do not give up exercise even if you think you just cannot do it. Low impact and stretching are useful and important. Go to the pool for some classes. This helps a lot with pain and can keep fit. Get into a support group there are others that share your pain and frustrations. Medications can have so many side effects that just are not worth it. Find a good specialist. Keep switching until you are satisfiedl. Do research and ask questions. It is your body and no one else knows how you feel except you. I recommend getting a good lawyer and try to get any kind of disability right away. Keep a journal each day. A pain and sleep diary will be good. Change your eating habits and eat healthy. Foods that give you energy are important. Do stress Management techniques so you don't get so overwhelmed. Have a support system, people that are supportive of you only. Stay away from negative energy. This is not helpful. This is the best advice I can give you. If you follow this you will be able to cope with this syndrome.

[ewford]

Take Magnesium for the fasticulations, Borrelia utilize and create a shortage of Mg leading to muscle jerks and tremors.

[melmel67]

Hello. I was just wondering what kind've vitamins did the doc put you on for fibromyalgia? I am still having the tremors and they are all the time and I can feel them all over including my heart and head and it's not getting better. Can u tell me about the neurontin. i want these symptoms to go away already. I got my results from the mri of the spine from the neuromuscular doc and she said all was normal nothing wrong with my nerves or evidence of ms or anything and she dismissed me :( i dk how evrything is suppose to be normal but yet I feel worse.

[ewford]

Mine was at 60, but I have heard of others being as low as 7.  2 weeks to get test back, BUT with more people getting tested, they run them in FULL batches, so yours might have been an early sample and they were waiting to fill up the batch.  Take a deep breath.  it will be in soon.   Let me know the results.  Thnx.