Do you have access to a teaching hospital? It sounds like you have a very complicated problem and need expert care. Best wishes
I have cerebellar atrophy-shrinkage of the cerebellum-due to radiation treatment when I was an infant for non-cancerous tumors on my face. The radiation damaged my cerebellum so as I age, more and more organs in my body do not function properly. Almost every organ spasms as do my skeletal muscles. Most problems are neuro-genic. I seem to be one of a kind so answers are in short supply. I'm searching for some direction because the doctors are giving up. For GI motility I am on Amitiza, Polyethelene Glycol (Miralax), & Benefiber. CREST Syndrome is a new diagnosis. I'm not sure if it's just an educated guess or I really have that. This is my first time posting on this website.
HI...I am not sure what might be going on nor do I understand what u mean by "brain problems"...would u mind elaborating?......
We r not drs in this forum...only other people like urself, sharing what we have learned with our own GERD experiences...we also offer support where we can.....
If ur issues r related to ur CREST syndrome, have u been put on meds for the motility issues?
"selma"
Have ur drs suggested diet modifications?...
"selma"