15 Years of Unexplained Abdominal Pan. Looking for Help.

[ann_1029]

Here's the saga. When I was 15 years old, I began feeling a sharp pain in the upper center of my stomach (directly below my sternum) right after I ate. It got worse and worse and over the course of a few months I couldn't eat at all. Doctors at first thought it was a parasite from a trip abroad, but couldn't find any evidence of it, and treated me for common parasites without any relief. My pain increased to hurting all the time, and over 6 months I lost an incredible amount of weight (down to about 70 lbs at 5'6"), was in and out of the hospital with no answers. I had a gastric emptying study that said my stomach was emptying at about 30-40% of where It should be. Had my gall bladder tested, which was normal. Was tested for Celiac, which came back negative. Had an NJ tube for a few months before my intestines telescoped around it and I got pancreatitis. Meanwhile, the mystery pain right in the upper center of my stomach never went away.  Finally about 14 months after symptoms began, they started easing up and getting better and doctors just said I had mystery gastroparesis and left it at that.

Since that time I've had an intolerance to eggs and gluten, but overall have been healthy for the past 10 years. Eggs cause my gastroparesis to come back for around 24-48 hours, and gluten causes overall edema of my hands / feet / elbows / knees.  

Recently and totally out of nowhere my mystery pain has come back. It's constant, I can't eat anything without spiking the pain, and it's in the exact same spot it was back then - right below my sternum. I've tried a liquid diet the past few days, but even broth has started to spike my pain. I'm determined to figure this out, but feel like I spent a year in the hospital seeing a ton of doctors without answers before, so I thought I'd try something new.

Any suggestions, similar experiences, or recommendations to specialists or other doctors to talk to would be wonderful.