I've been dealing with this for seven years now, and i'm at the end of my rope.
First started feeling dizzy and nauseous in Feb 2011. Became an every day thing in October 2011. I always felt like I was two second away from throwing up, and I could barely stomach 2-3 dry crackers.
I lost over 100lbs during first year, stayed around 270 lbs for another year. Weight gain started up again with no change to habits. I've always eaten healthy, I take long walks (when I can) and I try to take good care of myself. At this point, however, I've been trapped in bed for months feeling so sick, I can't even move.
Some of the more notable symptoms:
Temperature drops below average. (97.8-96.5) intense feeling of dizziness, feeling faint, hot flashes, intense nausea. Can't eat anything. Usually accompanied with bad digestion and diarrhea. Usually comes later in the evening and night. Lasts almost the entire night.
I tend to get less than 5 hours of sleep a night.
My hair started falling out around the same time this started, and has continued to remain thin and easily pulled out.
I feel dizzy, sleepy, faint all the time. All day. Every day. Perpetually exhausted.
Troubles breathing all day. Mostly on the exhale, something catches and I feel out of breath suddenly. I also find myself waking up in the middle of the night feeling out of breath.
Body aches.
I walk nearly every other day, depending on how sick I feel. I don't always feel better after walking. Usually the further I go, the more nauseous and exhausted I feel. I sometimes arrive home after walk feeling very faint, but not out of breath. Typically amended by sitting down/ laying down and staying very Still for a few hours.
Have thrown up in mouth a lot more often lately, which often triggers a panic attack. Usually have to lay down and not move for a while afterwards. Movement makes me dizzy and nauseous, and the anxiety I get tends to make the nausea worse. (I usually handle the anxiety with either medication or deep breathing etc.)
Skin has been bad since this started. Red bumps, hair under the skin rather than breaking it. Dry skin, some mysterious bruises but not many. Bruises on breasts for some reason. (No memory of any trauma/damage?)
I've had wounds open up on my skin for no apparently reason. (Wound center suggested an autoimmune disease, but told me it didn't encompass any other symptoms, like the nausea.)
I get chest pains off and on.
Sometimes i have trouble swallowing food.
Digestion goes from usual softness to random bouts of water diarrhea every other day or so. Stomach cramps gets worse the looser the stool it is.
I get very dizzy after using the restroom. Often feeling faint, as well. Used to have more blood in stool when this first started, but have noticed little to none in the past few years.
I can't seem to eat anything, and there are no noticeable changes when eating dairy, wheat etc. Everything causes nausea at one point or another. The only really obvious problematic food is tuna fish, which makes me sick no matter what.
I've been having serious problems focusing. I've been zoning out a lot more, having problems remembering things, having issues with writing and speaking. (Wrong words, letters in the wrong place, can't remember a simple word.)
I get headaches all the time, usually with dizziness and nausea. Mostly around eyes. (Left eye in particular) My speech becomes slurred and slow during the worse of these.
Shaky hands and legs every day. Hands seem to have a constant tremor these past few months.
My periods have stopped for months at a time, and have become pretty much nonexistent in the past few months. (Doctor's did diagnos PCOS, but again said that the gastro symptoms are not related)
In general, I've been physically and mentially miserable for years, and i'm desperate for any advice or ideas at this point. None of my doctors have come to any conclusions, and it's come to the point where i'm completly bedridden. I can't keep going like this, so please, any advice is welcome. Thank you.