Looking for CSID patients

[Daynak]

I'm looking for more people that have this. I really feel completely alone in this & I just really want someone to talk to. I know this is rare but I'm hoping to ask some questions.
-Dayna

[BrendaMcD]

My daughter was recently diagnosed with CSID and I found a very helpful support group through Facebook (CSID Parents & Patients).  I have already learned so much from feedback from the group when I have questions, etc.  Hope this helps!

[Paderla Anitha, DNB]

Hi, the prevalence of CSID has been reported to be around 0.2 %. Sucrase Isomaltase Deficiency (CSID) is a congenital disorder characterized by abdominal pain, cramps and fermentative diarrhea after eating. Dietary treatment for CSID is based on sucrose, isomaltose, and maltose restriction. The degree of restriction is patient-specific. You can try to reach patient support groups, they could provide an input for your condition. Regards.