UNCONTROLLABLE BILE REFLUX!! PLEASE HELP!!

[JayFaith]

Hello.  I have recently been diagnosed with bile reflux.  I have SEVERE, CONSTANT burning in my stomach, abdomen, and chest area.  The bile is refluxing not only into my stomach but my esophagus.  It is so out of control that is has caused my esophagus to not open properly from the burning not being controlled.  And most of all it has caused tachycardia with my heart to the point that when the burning is at it's worst I get heartrates in the 180's.  It has been narrowed down that the bile reflux is causing my problems.  I have a constant fire raging in my stomach/chest/abdomen.  I was prescribed Questran and Welchol, both of which gave me severe heartburn and gas, which did not help because it just went from one type of burning to another.  The only thing that seems to even help a little is Carafate, but not that much.  The docs have told me that they don't know what other meds to try.  Can anyone who has had experience dealing with bile reflux please offer some suggestions as to how I can control this.  It has not been determined what the cause of the bile reflux is.  I have had many tests done (hida scan, mri with mrcp, blood work, egd) the only thing I haven't had done is a small bowel follow-thru, gastric emptying study, and a colonoscopy.  I am not sure what happened to my body.  Prior to having bile reflux I had acid reflux for over 20 years and after seeing a post that said "activia" yogurt cured my acid reflux I decided to try it and after the 14th day my body exploded with excess gas, rapid heartrate(198), and uncontrollable belching(up to 20 min at a time), and severe burning that has not let up for the past 2 1/2 months.  I don't want to leave this out because also during the 14 days that I ate activia I also went on a yeast/candida free diet and and sugar free diet and got 2 IV iron infusions for iron deficienty anemia.  Not sure if these things had anything to do with it but I was pretty much healthy before I embarked on this 14 day diet change.  Based on the testing apparently "activia" did cure my acid reflux because I no longer have acid reflux I now have alkaline/bile reflux.  I am currently typing this from the hospital.  During the last 2 1/2 months I have been hospitalized 8 times.  All docs are puzzled and can't seem to help me.  When I take any type of PPI, H2 blocker, or acid med even something as simple as tums or rolaids, the burning gets worse.  When I tell the docs that they don't believe me but I have found many articles and posts that say that when you have bile reflux these meds make it WORSE....how come the docs haven't read this info?  If anyone has any suggestions on how I can control this bile reflux thing please let me know.  I am very desperate and in misery.

Also, not sure why the bile reflux developed.  I did have abdominal surgery but that was to remove fibroids and they used the same scar as a previous c-section about 3 months prior to this happening.  I do have adhesions from the surgery but bowels flowing normally.  When I ate the "activia" yogurt I am lactose intolerant, I think, and could I have possibly caused an ulcer in my colon.  I read that ulcers there could cause bile reflux, but haven't had a colonoscopy yet.  

Right now I just really need a suggestion of what I can take to get out of this constant burning and pain and then I will continue my search for the cause.  

Please help if you can.

[mani302]

hey mate !! i like the way you did this all and its a nice job really appreciated.

I think i am having the same bile issue because the time i finish my lunch or dinner and some time even during my eating the pain on in my stomach revolves like a hunting rat and it started killing me by making gastric and burning in my stomach specially in the right handside of my abdom but i never thought its getting so common now and so many of us are affected by this.

Any ways the idea is to control the diet rather then medicines.

[silly329]

where can i get some bravado!!!!!!!!!!!!!!!!!!!

[tatorfuzz]

I too had my gallbladder removed 10 month ago and have had nothing but agonizing pain from bile reflux diagnosed after EGD. It has gotten so bad that breathing and swallowing and the burning pain in my stomach and abdomen have been excruciating.  PPI's, carafate, creon, thumbs down, made matters worse.  I have just began working on my diet and the dry toast does assist in helping the problem.  What foods have worked best in reducing bile besides toast? Oatmeal seems to work okay also. Thank you

[tatorfuzz]

I too had my gallbladder removed 10 month ago and have had nothing but agonizing pain from bile reflux diagnosed after EGD. It has gotten so bad that breathing and swallowing and the burning pain in my stomach and abdomen have been excruciating.  PPI's, carafate, creon, thumbs down, made matters worse.  I have just began working on my diet and the dry toast does assist in helping the problem.  What foods have worked best in reducing bile besides toast? Oatmeal seems to work okay also. Thank you

[Acunga]

I have Bilre Reflux disease and tkae Controloc, De-Nol, Motilium.I do not drink, do not smoke, stoped spicy food, eat only chiken and stakes from swine(because i need to eat some meat, i am skinny) and vegetables but still it does not help.I also have bad breath from this and doctors think my dandruff is related to this.
I have possible cancer development
The operation is on the way...
I am trying Sickboy1 method but what exactly should i do?

[Raymy1012]

Psyllium husks common brand is metamucil. Take this mixed in whatever drink you choose and then sip water. This has staved off my symptoms for three months now. I was diagnosed with bile reflux through a scope. I hope this helps. I know the pain is unbearable. I had been dealing with it on and off for almost two years before I started taking the Metamucil.