Hi Beth:
I belong to a web group that has been a huge help for me. To find it, search the web for Yahoo! groups. Once you have the page where you can search the Yahoo! groups, search or "sphincter". There are about five of them. Only two of them are really worth joining. Michele's is by far the best as she is a registered nurse and an uncommonly kind, empathetic and supportive woman. Maddi's is wonderful, too. Just put in a request to join and within a day or two, they'll let you know that you've been accepted. Hopefully, if you join, you'll say "Hi" to me there?
Let me know how you make out at the GI? Or even if you just need to talk or vent, feel free to email or post. I am one of the few people who truly understand what you are going through and how it affects every aspect of your life. That's part of the reason the SODP webgroup is so great.
Take care of yourself. Good luck and Godspeed. All the best,
Sam
Thanks for your help - I will see a gastroenterologist
Hi Beth:
I'm so sorry you are suffering and being sent from Dr. to Dr. If I were you, I'd find a Gastroenterologist. Your family doctor can refer you. A HIDA with CCK is fine to evaluate the gallbladder but if it is Sphincter of Oddi Dysfunction or something else, an Endoscopic Ultrasound or MRCP with Secretin gives a great visualization of the pancreas, liver and ductal systems.
Don't give up on yourself!
Good luck and Godspeed,
Sam
gnorb is right you need a HIDA scan to determine whether or not your GB is functioning right. That SHOULD have been the next step after an ultra sound. I had no idea that you could determine GB function using a MRI but then I am not a doctor or nurse. I would insist on a HIDA scan. It can tell you not only if your GB is functioning but at what % it is functioning.
You know, you're the first person other than my sister to mention having only one kidney.
That said, has your doctor considered a HIDA/CCK?