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148354 tn?1211233906

does chronic appendicitis exist?

Here I go again looking for answers! at 16 was told I had IBS,wasnt too bad nothing I couldnt handle or tolerate..have some bad days constipated or the big D with cramps but didnt hit me like what im having now for last 7 months,usually had relief after bm, now its severe abdominal pain,belly button area, low left and right side pain,,sometimes radiates upper area and pelvic/rectal pain,stabbing pain,not crampy.Lost almost 60lbs,metal taste in mouth,heartburn,bloating,bad nausea,hair loss,appetite loss due to the pain (was on ensure but just now starting solid food..nothing agree's with me)bm's alternate,fever and night sweats,trapped gas (i havent been able to pass gas in months)alot of bowel noises and rumbling.After bm still continue to have urge to pass gas or stool but cant,Many trips to er,nothing can be found wrong,but this mimics appendicitis or  sometimes partial bowel obstruction,few times a month wake from sound sleep with "gassy diarrhea attacks" feel clammy/sweating/ feel like im gonna die.In April was in hospital for 3 days for this pain.Have had many procedures,tested for porphyria,celiac lactose intolerent,sprue,negative,mercury/toxin poison now.waiting on results.Many catscans,pap/pelvic exams,and ultrasounds,
Colonscopy-normal?,gi noted on biopsy some inflammation,said its ibs.
endoscopy-normal
hida scan-gallbadder is ok
laparscopy-no endometriosis
kidney ivp-no stones
I'm 28 and use to be active,I had to quit my job (cosmetologist) because most of time I cant even stand up,any ideas or similar experiences appreciated,ty (:
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Avatar universal
Sometimes it is a female problem.  I had the opposite. I was in severe pain, 10 on a 10 scale, and they kept telling me it was my bowel and sending me for tests, including a scope. It wasn't my bowel. It was my uterus.  I suffered severe pain for 4 months before they finally figured out that it was Adenomyosis and damage from a uterine ablation I'd had a year earlier. I had to have a hysterectomy.
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Avatar universal
I am hoping that this helps you.  My daughter (11 yr) had chronic severe pain in the lower right side for three months.  The pain was intermittent, and not constant.  All of her tests were normal.  The pain appeared like appendicitus, but all tests came up normal.  She was missing school 2-3 days a week from the pain.  We finally were fortunate enough to get doctors who really researched to find answers.  She was diagnosed with appendicular colic.  The appendix is basically having spasms and there is no test that shows it.  It is not that common, but it does exist.  The appendix appears perfectly normal, but the pain can be severe.  Think back spasms only inside your body.  My daughter had an appendectomy and has been pain free for 2 months.  Do not give up.  Keep going to emergency room when pain is severe.  The doctors need to see the pain to help you.
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Avatar universal
i do have a question: did your symptoms start out mild and then eventually develop to more severe.....like the vomiting etc.
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Avatar universal
Ok.  I also am now more motivated to look into Chronic Appendicitis.  I don't have the severe symptoms most of you describe.  I have a dull ache in my right abdomen...feels like cramping.  It's not a female thing since I am a guy.  I get immediately worried about something worst like pancreatic cancer.  I've only had one test so far, an abdominal ultrasound and everything seemed ok.  I'm 50 so I', scheduling a routine colonoscopy.
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Avatar universal
I'm going thru something simular with my 11 year old daughter.  How bad was your sons pain when this first started.  Right now it's next to my daughters belly button.  It hurts worse when she jumps or runs or when the area is pressed.  She's occasionally nauseous but no vomiting. The pain has slowly gotten a little worse as the week goes on.  All her blood work and ultrasound came back normal.  My gut is telling me this is related to her appendics but the childrens hospital said it wasn't and they have no idea what is wrong.  Thanks in advance.  
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Avatar universal
My story is a little different as I have (luckily) not suffered from terrible pain until the last stage. I post here in case it helps others, and also it would be nice to hear of any similar cases.

I have lived as an invalid for over 20 years. Used to be very fit, danced all night.
After I had a child at 42 I got PID badly infected abdomen. Never really recovered.

I lived without pain but in extreme weakness, at worst able to walk only a few steps. I overcame this by sheer willpower, a strict diet, and careful exercise moving in bed if necessary. Until I could swim and walk and live a 75% normal life.
But never got better. Still weak, low stamina, poor immune system. In my 40s and 50s lived like 90. Motherhood blighted, but lucky to have devoted husband.
Tests showed nothing except 'a virus' in my blood.

I tried all kinds of things. Echinacea helped in large doses so I thought I just had damaged immune system. I did not know till much later immune system is about the gut.

I did have episodes of violent diarrhoaea. But not that often - once, maybe twice a year. Not enough to connect them. I thought it was just the weak immune system unable to fight off a bug.

Then - progress. I tried colonic irrigation (washing out my gut) with a nurse practitioner. Magic! As soon as it was done I felt 30 years younger, colours bright, food tasted wonderful, I felt sexual!!! I would crawl up the stairs to see her and bound down them like a happy kid!
But it wore off over several weeks and I'd go back again 8 -12 weeks later. Please note I was on very very healthy diet; the practitioner actually laughed at what came out of me it was so unusually good stuff!

All the time I was struggling with my weight. In spite of strict diet and exercise I was borderline obese. My abdomen and waist was very swollen as if pregnant, and very solid, firm to touch. Even when I did with great difficulty lose some weight my abdomen and waist was still swollen and hard.
Plus oedema - puffy hands, knuckles. ankles. I thought this and the belly was due to overweight. (But friend tells me now belly was wrong shape for obesity but she felt her opinion counted nothing against doctors)

I had several episodes of diarrhaeia in the last year.
Then 2 weeks ago blinding pain in abdomen. Into hospital, and appendix out.

Here's the thing - as soon as I woke up properly the next day, I felt the identical explosion of wellness, clear head, full on energy as I had had after every  colonic irrigation. Identical.
This has stayed and not reduced. I wake up fast and fully awake like I haven't felt for 20 years. Food tastes fantastic, I can even see and hear better.
My abdominal swelling is going down rapidly. Weight is reducing daily without effort and not yet able to exercise! Knuckles less puffy.

This HAS to be the appendix. I believe it has been slowly giving a small leak of yuk into my body for 20 years or more. But I even stories here and elsewhere do not mention any story this long.
Yet the evidence is clear. I was behaving as if slightly poisoned for 20 years. Colonic irrigation relieved it temporarily for a few weeks; then appendectomy stopped it completely.
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