esophilic esophagitis

[hurting007]

I was diagnosed with this over two years ago.  I was tested for food allergies - every one possible to be tested for - and I have over 25 food allergies.  The healthy foods are what I am most allergic to, but there is no type of food that I am not allergic to.  I have had increasing problems and more allergies.  The GI says he can re-endoscope me and I can just let him know when, I guess to know the progress etc. of my condition.  It has taken me 8 months to get another appointment with my allergist and won't see him until the end of the month.  I have been on oral prednisone spray and omeprazole.  I take a non-drowsy Claritin type tablet every day.

The stuff I used to have a mild reaction to now have been foods I am very allergic to.  My swallowing problems and impaction have come back again.  I keep decreasing what I am able to eat.  I stay exhausted all the time.  I take vitamins and supplements per my doctors.  I have to wonder if I am getting enough real nutrition.  I am disabled with multiple disabilities.  I also have 3 balance disorders, one of which is rare.  I understand that can cause a lot of exhaustion also.  I have been having more migraines than normal.

I am wondering if I need to go on an enteral formula.  My mother-in-law had to go on TPN with her GI scleroderma so I am not so eager to be on a formula, but at this point I don't know what else to do.  By the way, she told me that she used to have the same type of problems as I have and she thought I had the same condition she did.  I have heard this can progress into scleroderma, lupus, etc. if not treated.  Please give me your thoughts on what I am going through and what you would recommend for someone in my position.  I realize they would only be suggestions, etc.


This discussion is related to Allergic Esophagitis.

[hurting007]

Yes, I have checked it out already.  I have specialists.  EE is pretty new, especially to adults, so not a lot has been fully studied and long-term researches done.  I keep up with medical journals on it, I have search engines set up to give me updates.  Food allergies, part of immune system issues, are known to develop into other problems -- like EE.  

[CalGal]

Hurting, have you checked out the website: http://www.apfed.org/ee.htm?

EE can be very complex and to help to handle it, you may need to talk with a specialist in this problem.

To my knowledge, EE can not progress to other conditions. It is an 'entity' all of its own.