Keeping you in my thoughts and prayers!
I am 50 yr old female. Was diagnosed 9 yrs ago with cirrohsis. Maintaining fair.but have esoph. Varacies they want to band. Not wanting to do that for fear of infections. Also, I did not get it fro. Drinking(NASH)and will be good candidate for transplant. But dont think I want one. The rejection meds I hear are hell on you, and other complications could make you even sicker. Quality vs quantity??
I think it depends on what you want and your family. I hope you are able to get a transplant. This would be wonderful. But, I do think you need to know all of your options. Just because you consult with hospice doesn't mean that is a solid decision. You can see what they have to offer. I do know they not only are there for you but very much there for your family also. There is nothing wrong with a Plan A,B,C. Sometimes, unfortunately, insurance companies say how long you can be in the hospital. That is something you will have to check on. I am sorry you are having to do all of this and will be praying for a transplant option-if this is what you want. I wish you all the best.
We left hospice yesterday after my sister in law passed
she had liver and kidneys shut down.
She was in hospice 2 days, were she was more comfortable than in hospital.
She was not aware of her surroundings.
She had been in hospital 4 days, doctors , and in confused state, it was nto as bad as other stories seemed to have indicated on here.
I hope you do well.