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Relentless Nightmare


I hv ulcerative colitis & on Pentasa 500mg since 2 yrs. Happily married but committed the greatest sins ever: Oct10 this year I went / my colleagues to Ger on business visit & went to Koln FKK, I had 2 escorts protected vaginal w/ no defects-unprotected oral/receiver only) - 2nd nite the same but w/ 1 French kiss 1-2 min. Nov17 I had shiver and hi fever & night sweat (shiver a couple of times -fever 1st day 40C and the second 2 days 38 & then gone-had a minor fever blister on my upper lip & gone after 2 days-afterwards & 4 a period of 10 days I felt tiredness (no swollen nodes, no diarrhea, no loss of weight, no nausea, no headache, no ulcers) on 27 of Nov I had  trip also 2 Germany, that date I felt a bit hard to breathe so went to the doc(X-ray clear and gave me Senicod and Aerius since assumed it is bronchitis) On the plane my ear popping during take-off and landing.since I shaved my hair neck with a razor, I had a rash on my back neck-on z plane- wide around .5eachx6 (for 3 days). Nov30&Dec1 we also went to FKK in Ffurt and had the same as above w/o any French Kissing / oral protected. Anxiety up - I was still feeling weak during the trip due chest congestion &smoking around 22 cig per day. back on Dec2 I went to the doc regardin my chest and gave me Tavanic Antibio (1.5 pills/day for 6 days) along w/ Senicod & a CBC and Ferritin (both were normal). CBC similar to 2010 WBC 8.8 (up from 8.2). I resumed work w/ minor fatigue. Panic: yesterday 16th when I felt itchy & had very itchy pimples are pinky & almost .6 cm each (2 on my left wrist  3 at the waist & 2 on my feet. I checked my body and was shocked to death when I saw rash around17 pimples (reddish, small, and not itchy at all) upon my back (left side only spread in a 15cm diam - don't know when they occurred.
Q: what r the odds of HIV (evident symptoms but i was almost perfectly protected, or might I be one of the unluckiest 0.2% in the world. Thank you
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Avatar universal
Hello Ronin,
Did you read the link that I sent to you previously? The link from FreedomHealth about the early HIV symptoms? You should read it.

My friend, you should stop reading all other websites in the Internet. Stop it right away. If you really can't help it. ONLY read these few sites:
1. http://www.medhelp.org/forums/HIV---International/show/383
2. http://www.medhelp.org/forums/HIV-Prevention/show/117
3. http://www.freedomhealth.co.uk/
4. http://www.thebody.com/

In this medhelp website, which is the website that we are communicating right now, there are 2 HIV related forums:
1. HIV International - Which runs by the great doctors from FreedomHealth UK , Dr. Sean, Dr. Jose and Dr. Mervyn and Dr. Alex.
2. HIV Prevention - Which runs by great doctors Dr. Handsfield and Dr. Hook from US.
You can find both the links above given.

Please only read from these 4 websites and not others. Other websites information might be inaccurate, outdated, not written by doctors, well probably by doctors but not specialists that can even come near to Dr. Sean, Dr. Jose, Dr. Mervyn, Dr. Alex, Dr. Handsfield and Dr. Hook. So, in conclusion, apart from these 4 websites, other information is NOT reliable.
You need to be really clear on this, because reading inaccurate information will only cause further scare and that's no helping at all in our situation. Cool?

Now, if you have not read about the link that I sent you, let me summarize for you. Major early HIV syndromes almost always happen at the same time. The early HIV syndromes include:
1. Very High fever.
2. Severe sore throat.
3. Whole body maculopapular rash (look for google pictures).

Other symptoms other than above are less likely to be related to early HIV symptoms.

I have read again, again and again. I still cannot relate your symptoms to any of those mentioned above. And, again, if your symptoms are really related to HIV, your test MUST have became positive. But, it was not. So, that rule out completely about the symptoms.

And, I have to repeat this. I think you should not diagnose yourself based on symptoms. It's wrong. A lot, a lot of people like you keep on worrying about symptoms to only find the results negative later. So, what causes the symptoms? It could be other sickness. But, if you ask me, I think it's the stress and lack of sleep. The anxiety level has gone so high that you cannot think properly. Any small pimple is now HIV related to you. A mouth sore, probably not enough water or eating too many fries become HIV related to you.

Yes. You should stop worrying. You are correct that most symptoms will appear around 2-6 weeks. Quite unlikely to happen after that. But, most important you should know that your symptoms are not really early HIV symptoms to begin with.

Your mild fever, brown dots, and whatever you think you are facing now are all not related to early HIV symptoms.

Well, if you want to know about me. I don't have any symptoms. Well, probably some pimples on my face (which happens all the time) since I was a teenager. And, I have accepted the advices from many doctors (in forums and personal doctors). DO NOT look for symptoms. Symptoms are not most INACCURATE way to detect HIV. So, you must stop worrying about symptoms. I have read in the forums that some people have really matching symptoms but ended up tested negative. So. I didn't really spend too much time to look or worry about the symptoms. Well, unless I suddenly get high fever, severe sore throat and rashes in many parts of my body, then I probably will get worry and need to be tested soon. Else, some small pimples, mild fever (most probably because of lack of sleep) won't bother me at all.
Now, I hope you are clear on this man. Please stop looking at symptoms and start to treat the real problem. You can wait until end of Feb for the test. But till then, you need good sleep every night. I mean EVERY NIGHT.
Go see doctor and tell him/her your sleeping problem. Act NOW!
Initially, when my doctor prescribed me with Xanax, I was quite reluctant to take, fearing I might get addicted. But, if you control the consumption, you should be fine and won't get addicted.
After I started Xanax, I can sleep a lot better. With good sleep, I can think rationally and won't get panic over symptoms. I bet most of the symptoms that you mentioned that you have are not even real. When you are tired because of lack of sleep, you will start to imagine things, fear of the slightest thing or possibility.
Dude, this is final. DO NOT LOOK INTO YOUR SYMPTOMS again. DO NOT SEARCH IN THE INTERNET FOR HIV INFORMATION EXCEPT FOR THE WEBSITES RECOMMENDED. AND PLEASE GET HELP FOR YOUR SLEEPING PROBLEM.
There are around 4-5 weeks to go before you reach end of Feb. Not too long to go, but if you don't have enough sleep. Be sure you will get a HIV NEGATIVE result but you will hell lots of other illness. You might even get mental illness. So, get help for sleeping. Really! Act Now!
Helpful - 0
Avatar universal
Dear SunnyLee,
Good days. In effect, I am facing a conflict of interests over here, please find below the breakdown:
First 34 days after second exposure
I did the Antibody test at 3 months after first exposure (conclusive hopefully) and which is 34 days after the second exposure. The ‘suspected’ symptoms that I had following the second exposure appeared before the test: just to recap: Rash of Acne and pimples, loss of appetite, moderate weight loss, lower back pain, modest penile tip burn with no discharge or other symptoms, small white dots under my tongue (still existing), colon disorder, mild diarrhea, urge to vomit, a bit of malaise, night sweat, lack of proper sleep.
Day 35 till date
Brown dots x 4-5 on my chest and can’t recall if existed before, light brown patches on my back around 15-20 (.7cm each) which I always had but can’t recall if they were that large, 2 days bearable malaise, 5-6 days till date on-going diarrhea (once per day and mild), mild fever recurrence as described before, yesterday I had an engraved red dot (not ulcer or canker and not tingly/itchy at all) on my tongue side which is not bloody, yesterday I had a minor sore throat which is almost gone today, today I had a small lymph node on my left side of the neck, night sweat is mild but still on except last night. Tongue thrush from day one after second exposure: usual have it every now and then due to Ulcerative Colitis. WBC: decline of 27% roughly.
SunnyLee, my question is:
Q1: Might those additional symptoms of yesterday and today (dot, throat, nodes) be related to ARS
Q2: Don’t you think I should stop panicking now since I have reach day 53 after the exposure since most of the websites mention that if there is ARS then they will occur between 2-4 weeks / 2-6 weeks. The reason behind this question is that I am indirectly waiting for any daily symptom and start panicking about it causing hope imbalance.
I do know that I increased the number of cigarettes per day (from 8-9 before rash appearance to 17-24 after rash), anxiety and stress most of the time at their peak, lack of sleep, lack of good diet, lack of water intake (only around 500ml per day), weather drastic change in town (from 20C 3 days ago to 7C).
I know I am repeating myself everytime I talk to you but the answers to these 2 questions will give me a relief till the date I get tested (couldn’t manage to get re-tested here secretly and have to wait till end of Feb).
Sorry man but I highly value your extensive knowledge and you know an external party like you would be more logical and scientific than me surfing the web to seek out the answers because I’ve been trying it and the more I dig deep the more I look for negative answers.
On the other hand, hope you share with me your symptoms that you faced if you don’t mind… not for comparison but for me to probe into some positive indicators pertaining to your case. When it comes to others, I’m a great motivator. When it comes to me, I become a masochist.
Take care man and I owe you a lot.


Helpful - 0
Avatar universal
Hi Ronin,
Well, if you want to do a test in this week. It's good. I think you should have reach 8 weeks from the last exposure. And, according to Dr. H. Hunter Handsfield, testing at 8 weeks is as good as conclusive already.
So, yes. If you feel like doing so. Go test at 8 weeks. Get the negative result and forget about the whole thing. You will be fine.
Else, you can also wait for 12 weeks mark which is not long to go. A negative result at 12 weeks according to ALL doctors that I have met whether in Forums or personally, ALL doctors agree that a negative result at 12 weeks is final and fully conclusive.
And, again, your symptoms are NOT early symptoms of HIV. Clear? They are not...simply not...no matter how you want to relate them. They are still not.
Yes, you will start to enjoy life. A negative result which you will get soon, will give you the assurance that you will need that you are healthy. And, this difficult time will serve as a lesson for you. And, you have learned from your mistakes. And, you will appreciate your family more. And, you will appreciate your life more.
So, yes. You are right. You will be enjoying your life more than ever.
Having said all that, I hope the same will go to me.
Take care...
Helpful - 0
Avatar universal
Dear SunnyLee,
I appreciate every single word you wrote since day one. Your input had been my Xanax:) --- first joke since a long time. I will try to cope with the situation positively and will try to arrange another test this week for re-re-assurance because what happened to me last night would have led to a heart attack. I will pray for you as well from the bottom of my heart and I started to slightly believe that we will be enjoying life more than ever.
Take care my friend.
Helpful - 0
Avatar universal
Hi Ronin,
Glad you can understand. Your son is definitely safe. 100% without any doubt. So, there will no chance for you to end your life. No way No how.
Yup. I'm glad you understand that if the symptoms are related to HIV, you should have been tested positive. But at 34 days, your result is negative. That alone ruled out all the symptoms.
Keep in this in mind. The risk is low. Dr. Sean has said that is his reply to you. Trust him.
Like I said earlier, get some help for your sleeping problems. Lack of sleep will cause pimples (that's for sure), bad skin, unable to think properly (thus having lots of negative thoughts), easy to catch cold, and many other sicknesses. Sleep well. And you will be fine.
Helpful - 0
Avatar universal
Dear SunnyLee,
Thank you for your usual input which has been quite positive helping me to chin up till we reach month 3. Actually, the rash was the pri)mary cause of Panic. I started the thread because of the rash which took place 14-15 days after last exposure (Nov. 30/Dec. 1). I never had a rash in the last 3 years or so and out of a sudden I had 2 kinds: the pimple-like and the acne on my back.... I went to the first Dermatologist twice and to the other one 3 times... both confirmed over and over that the pimple-like were insect bites from the mattress/air (they re-appeared and vanished within 10 days) and the acne on my back is still as is. I informed both about my exposure and still they insisted they were not HIV related... I was suspecting their judgment because I informed them about my sexual exposure that they took place in Germany and maybe their judgement was based on the fact that HIV in Germany is quite minimal and people with HIV in this town are quite few beside my low-risk. Besides, I have always had some brown patches on my upper back but when I looked at my back a week ago or so I felt that they grew bigger but my wife says they are the same. I am assuming that I am HIV free from the first exposure (Oct. 11) since I took the test at exactly 3 months from first and 34 days from second. I felt a bit better after reading your thread. I spent most of the night crying like a baby, toughest night ever in my life since I felt my son is at risk... SunnyLee, if something happens to him I will put my life to an end.. I have dedicated a full 1.8 years in rasing him with my wife and he is the main reason of my happiness... I will try to take another test before 3 months also secretely and then at 3 months. You once mentioned if ARS are related to HIV then the result will be positive so this helped get rid of the main panic which is the Rash. The other panic of my son is in God's hand and your input regarding Saliva in the air. The remaining panic which I cannot solve is the WBC first time decline in the last 2-3 years... however, and hope God forgives me, either my life will become a perfect one with a full love and dedication to my wife or son, or I will be here no more.
Thank you SunnyLee, and again sorry I'm being the one complaining about my ARS and panic and you are being a listener.. but believe me, you are the only one left... my couple of friends here got sick and tired of listening to my anxiety. God bless you and I will embrace your input: 34 days is 90% assuring - my symptoms not that related to HIV - son and saliva out of question. Hope we meet in the future when we are done with this.
Helpful - 0

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